Patient Involvement Improves Research
A patient offers his viewpoint on what’s standing in the way of patient centered care in the U.S., emphasizing the need for patients and researchers to work together.
Stephen Hoy is the Chief Operating Officer at PFCCpartners. Diagnosed with mitochondrial disease as a child, Stephen has extensive experience in managing his health to best support an active lifestyle of outdoor activity. Growing up so deeply involved in his own care has given Stephen a profound view of how patients and families can be utilized as a resource across the healthcare continuum. He now serves as a Patient Family Advisor locally at Mammoth Hospital in California, and nationally in partnership with organizations like National Quality Forum (NQF), Centers for Medicare and Medicaid Services (CMS), Institute for Healthcare Improvement (IHI), and the American Institute of Research (AIR).