The emergence of new data from electronic health records and other sources opens up opportunities to support, develop, and conduct research that better meets the needs of multiple end-users, including patients and consumers. In parallel, an increased focus on patient and consumer engagement in research processes is evident through many new policy initiatives, the inclusion of patient reported data in research projects, and the creation of the Patient Centered Outcomes Research Institute (PCORI), which recently issued a draft definition of Patient Centered Outcomes Research (PCOR). During this event, key stakeholders will comment on the potential implications of these new data streams for PCOR, and share their expectations and hopes for what they could mean to their respective constituent groups.
Free 101This webinar was a follow-on to the September 14th event titled: “New Strategies for Engaging Consumers in Development and Use of Evidence” which discussed the growing set of questions for comparative effectiveness research (CER) projects around how, when, and to what extent to engage patients and consumers in figuring out what works best for whom, and under what conditions.
Download presentation slides here.