Overview


This webinar introduced Enhancing Systems of Care for Children with Medical Complexity (CMC) as a five-year Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB)-funded initiative. This 90-minute session provided an overview of the initiative and its five Demonstration Sites working to improve models of care for CMC. It also assessed outcomes that are informed by and meaningful to CMC and their families, ensuring all CMC have the potential for optimal health and family well-being. The session was framed by a parent caregiver, together with a provider perspective, who will address how to better engage patients to advance equity.

Watch Recorded Webinar 


Learning Objectives


Participants of this webinar: 

  • Learned about the initial progress of the five HRSA-funded Demonstration Sites.  
  • Understood the importance and potential impact of this initiative to drive improvements in equitable family experience and outcomes of CMC care.  
  • Gained awareness of where to access related resources and future materials disseminated by the Coordinating Center and the Demonstration Sites. 

Participating Speakers


Moderators:

Staff

Elizabeth Cope, Ph.D., M.P.H.

Vice President, Health Systems Improvement - AcademyHealth

Elizabeth L. Cope, PhD, MPH, is Vice President of Health Systems Improvement at AcademyHealth where she oversees a portfolio focused on the advancement of just, resilient, humanity-affirming systems of care. Read Bio

Antonelli headshot (white male in a blue-collar shirt)
Member

Richard Antonelli, M.D., M.S.

Medical Director of Integrated Care - Boston Children's Hospital

Richard Antonelli, M.D., M.S., is Medical Director of Integrated Care at Boston Children’s Hospital. Dr. Antonelli is a general pediatrician who has spent more than three decades serving children and youth with special health care needs and their families, with extensive experience working at the national level and in many states evaluating care delivery and informing improvement efforts. Read Bio

HSRA Representatives:

Presenter

Jeffrey P. Brosco, M.D., Ph.D.,

Director - Division of Services for Children with Special Health Needs (DSCSHN), HRSA

Dr. Brosco is a pediatrician and historian who serves as the Director for the Division of Services for Children with Special Health Needs (DSCSHN) in the Maternal and Child Health Bureau (MCHB) within the Health Resources and Services Administration (HRSA). Read Bio

Anna Maria Padlan, M.P.H.

HRSA'S Maternal and Child Health Bureau

Anna Maria Padlan joined HRSA in 2004 and currently works in HRSA’s Maternal and Child Health Bureau in the Division of Services for Children with Special Health Needs.  Read Bio

Speakers:

Amy Houtrow, M.D., Ph.D., M.P.H.

Pediatric rehabilitation medicine physician - University of Pittsburgh

Amy Houtrow is a pediatric rehabilitation medicine physician and disability equity health services researcher who has dedicated her career to improving the health, functioning, well-being and belonging of children with disabilities. Read Bio

Demonstration Site Representatives:

Rahel Berhane, M.D.

Founding physician - Dell Children's Comprehensive Care Clinic (CCC)

Dr Berhane is the founding physician of the Dell Children's Comprehensive Care Clinic (CCC) and serves as its medical director. Read Bio

Presenter

Koslyn Lyles, M.S.

Director of Home Based Services - Childkind, Inc

Koslyn Lyles is Director of Home Based Services at Childkind, Inc. working to enhance parent’s skillset, knowledge and preparing them to be their own care coordinator around their child’s complex medical needs. Read Bio

Jennifer White, D.N.P., A.P.R.N.

Pediatric Nurse Practitioner - University of Florida Health

Jennifer White, DNP, APRN is a Pediatric Nurse Practitioner at University of Florida Health with a special focus on follow up care after Neonatal Intensive Care Unit (NICU) discharge. Read Bio