Knowledge sharing between organization leaders to share information and explore opportunities for cross tumor collaborations, and increasing knowledge about, access to, and appropriate use of the latest oncology precision medicine tools.
National – US
Aggregate de-identified oncology patient data from EHRs for research, quality improvement, and clinical decision-making.
National – US
Help cancer patients navigate insurance, financial, and systemic barriers to accessing biomarker testing and precision medicine.
Organization
Patient Advocate Foundation
National – US
Campaign that was dedicated to advancing conversations between patients and healthcare providers about necessary and unnecessary tests, treatments, and procedures for various health conditions, including when cancer biomarker testing is appropriate.
Organization
ABIM Foundation
National – US
Provide an open-access, expert-crowdsourced knowledge base for the clinical interpretation of cancer variants to enable precision medicine.
Organization
WashU Griffith Lab
National – US
International
Build an authoritative central resource that defines the clinical relevance of genes and variants for use in precision medicine and research.
Organization
ClinGen (Clinical Genome Resource)
National – US
International
Identify high impact published literature on the clinical value of biomarker testing in NSCLC, disparities in testing in NSCLC, and optimal operational improvements for implementing biomarker testing in NSCLC.
National – US
Understand the extent to which commercially-available small and large NGS panels capture biomarkers recommended in NCCN guidelines and/or required for clinical trial eligibility.
Organizations
Illumina
Curta
National – US
Embed biomarker testing into EHR workflows across multidisciplinary cancer care teams.
Organization
Association of Cancer Care Centers (ACCC)
National – US
Enable real-world evidence generation on cancer biomarker testing patterns, treatment decisions, and outcomes by structuring oncology EHR data at scale.
Organization
Flatiron Health
National – US
International
IASLC project examining how health systems implement biomarker testing and why gaps persist. Builds on the 2024 global survey through direct study of testing delivery in different settings.
Organization
International Association for the Study of Lung Cancer (IASLC)
International
IASLC advocacy toolkit supporting engagement with policymakers on lung cancer care. Includes calls to improve access to and reimbursement of biomarker testing within broader efforts to reduce disparities.
Organizations
International Association for the Study of Lung Cancer (IASLC)
The Health Policy Partnership
National – US
International
Integrate guideline-concordant biomarker testing into gynecologic cancer care.
Organization
Association of Cancer Care Centers (ACCC)
National – US
Mandate Medicare coverage of lung cancer biomarker testing under title XVIII of the Social Security Act.
Organization
U.S. Congress
National – US
Develop and implement quality measures that assess cancer screening and treatment quality across health plans.
Organization
National Committee for Quality Assurance (NCQA)
National – US
Address structural disparities in biomarker testing access for Medicaid beneficiaries.
Organizations
Association of Cancer Care Centers (ACCC)
American Cancer Society Cancer Action Network (ACS CAN)
+1
National – US
Remove barriers to genetic and genomic testing for cancer patients.
Organization
American Society of Clinical Oncology (ASCO)
National – US
Develop and promulgate evidence-based guidelines, practice implementation strategies, education, and workforce development needs for informatics and data interoperability related to molecular biomarker testing in oncology to promote appropriate and equitable access to high-quality guideline-concordant patient care.
Organization
Association for Molecular Pathology (AMP)
International
Drive measureable imporvements along precision medicine pathway with a focus on reducing gaps for patients with solid tumors.
Organizations
Association of Cancer Care Centers (ACCC)
Lilly
National – US
Improve global lung cancer biomarker testing rates and reduce barriers through survey research, education, and a planned series of initiatives targeting awareness, access, process, and policy.
Organization
International Association for the Study of Lung Cancer (IASLC)
National – US
International