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Overview

An hour-long webinar featured parent partners and leaders from the systems of care for their children as they described “the why” that motivates their participation and the “how” that keeps them involved. The session highlighted how two HRSA-funded Demonstration Sites collaborated with family partners to discuss and implement care delivery model improvements for their children with medical complexity (CMC).Attendees gained valuable insights into caregiver priorities, effective engagement strategies, and ways to actualize “meeting people where they are.” The webinar included open dialogue from two sets of engagement partners about assessing group needs, sharing power, and facilitating meaningful involvement of caregivers and parents of CMC. Additionally, there was dedicated time for attendee questions and discussions about the importance of family engagement in various settings.

Learning Objectives

By the end of the webinar participants:

  • Learned strategies for effective family and patient engagement within care systems, emphasizing practical approaches implemented at participating sites.  
  • Heard directly from families involved in the initiative, exploring real-life accounts to deepen understanding of impacts and challenges.  
  • Identified actionable insights from the initiative that can be applied to improve engagement in various health care settings for children with complex medical needs. 

Participating Speakers

Moderator:

Steph Lomangino, L.M.S.W.

Program Strategy Manager - FamilyVoices

Steph Lomangino, L.M.S.W., (they/them) is the Program Strategy Manager at Family Voices. Read Bio

Presenters:

Presenter

Timothy C. Tate

Parent - ChildKind, Inc

After his two young children were diagnosed with Type 1 Diabetes, Timothy Tate joined the ChildKind Parent Program. Read Bio

Presenter

Koslyn Lyles, M.S.

Director of Home Based Services - Childkind, Inc

Koslyn Lyles is Director of Home Based Services at Childkind, Inc. working to enhance parent’s skillset, knowledge and preparing them to be their own care coordinator around their child’s complex medical needs. Read Bio

Presenter

Jeffrey P. Brosco, M.D., Ph.D.,

Director - Division of Services for Children with Special Health Needs (DSCSHN), HRSA

Dr. Brosco is a pediatrician and historian who serves as the Director for the Division of Services for Children with Special Health Needs (DSCSHN) in the Maternal and Child Health Bureau (MCHB) within the Health Resources and Services Administration (HRSA). Read Bio

 

Presenter

Sherry Mitchell

Family Liaison - Dell Children's Comprehensive Care Clinic

Sherry Mitchell is the Family Liaison at Dell Children’s Comprehensive Care Clinic. Read Bio