Webinar: A Community-Led Approach for Measuring and Improving Quality of Care
Join us for this Health Equity Webinar to learn how the IIDDEAL project developed a quality rubric centered on what matters most to people with intellectual and developmental disabilities. Discover key findings and their impact on measurement, clinical care, and policy.
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Overview
People with Intellectual and Developmental Disabilities (IDD) experience persistent poor health outcomes, including higher rates of COVID-19, maternal mortality, mental illness, chronic conditions, and preventable injuries. Despite these disparities, the United States lacks a consistent approach to measuring the quality of healthcare for this population. The IIDDEAL project engaged more than 200 community and healthcare stakeholders, including individuals with IDD, caregivers, clinicians, researchers, payers, and policymakers, to develop a quality rubric based on outcomes that matter most to people with IDD.
This webinar will present key findings from the IIDDEAL project and explore their implications for quality measurement, clinical practice, and policy. Panelists will discuss the development of nine health outcome domains, 29 supporting healthcare elements, and the most appropriate existing quality measures, along with strategies to address current gaps and support adoption in programs such as Medicaid.
By the end of the webinar, participants will:
- Understand the domains of health outcomes that matter most to Intellectual and Development Disabilities (IDD) stakeholders.
- Understand the alignment of current quality measures with priorities in IDDEAL.
- Understand the opportunities for payers, clinical organizations, and policymakers to advance adoption of learnings from IIDDEAL.
Featured Speakers
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Teal W. Benevides, Ph.D., M.S., OTR/L, FAOTA
Teal W. Benevides, PhD, MS, OTR/L, FAOTA is a wife, mother, occupational therapist, and internationally recognized researcher. Read Bio
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Mai Pham, M.D., M.P.H.
Mai Pham, M.D., M.P.H., is President and CEO of IEC. Mai co-founded the organization in 2020 with the goal of advancing equitable healthcare outcomes for people with IDD. Read Bio
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Julie Seibert, Ph.D.
Julie Seibert leads NCQA’s efforts to advance the quality of behavioral health care, conducting research on measurement approaches and methods Read Bio
Earlier this year, the AcademyHealth Health Equity and Women and Gender Interest Groups launched a new webinar series aimed at advancing inclusive and impactful health research. Designed to spotlight pressing issues, amplify diverse voices, and drive innovation in research and practice, the series shares timely studies, effective strategies for community-engaged work, and highlights a range of career pathways in the field.
Attendees can expect engaging speakers from varied backgrounds, relevant topics, and actionable insights to strengthen their work and build essential skills for driving meaningful change in health research and policy.