Patients and Researchers Can Go Further, Together
This Viewpoint was prepared in response to the discussion held at a Robert Wood Johnson Foundation and AcademyHealth meeting on Patient Centered Care that took place in May 2019.
Diagnosed with mitochondrial disease as a child, Stephen Hoy has extensive experience in managing his health to best support an active lifestyle of outdoor activity. Growing up so deeply involved in his own care has given Stephen a profound view of how patients and families can be utilized as a resource across the healthcare continuum.
Stephen outlines his perspective reflections after a May 2019 meeting, which was informed by a discussion paper prepared by researchers at the Harvard School of Public Health on the barriers to delivering patient centered care.