Patient & Consumer Engagement

A growing evidence base supports the value of incorporating the patient perspective into research studies and as part of routine care using patient-reported outcome measures (PROMs). The PROTEUS Consortium helps optimize the capture and communication of PROM data in research studies and clinical practice by providing free, publicly available, user-friendly tools and resources.

AcademyHealth President and CEO Aaron Carroll was recently featured on two podcasts in which he expanded upon critical public health challenges and how effective communication and involving those with lived experience a seat at the table leads to better health outcomes for all.

President and CEO Aaron Carroll discussed his vision for health services research at the June 2024 National Advisory Council Meeting for the Agency for Healthcare Research and Quality (AHRQ). This first post in a two-part series focused on his priorities in innovations in HSR methodology, supporting diversity, equity and inclusion, and incentivizing community and patient partnerships.

Posthumous honor celebrates the legacy of the beloved, boundary-breaking patient advocate who helped define AcademyHealth’s patient engagement efforts.

Working in close partnership with patients, caregivers, researchers, and practitioners, Innovation and Value Initiative and AcademyHealth developed a new framework to recognize the broad health care economic impacts on patients and caregivers and aid researchers in addressing health disparities and creating value for patients and systems.

The final post of the Health Equity Meeting blog series explores federal priorities and initiatives undertaken by the Center for Medicaid and CHIP Services and Center for Medicare and Medicaid Innovation targeted towards advancing health equity in Medicaid.

Our third post in the Health Equity Blog series summarizes a discussion by researchers and policy administrators outlining opportunities for states to further health equity through managed care organizations. Representatives from Michigan also shared their efforts to embed health equity throughout their state’s Medicaid program.

A PCORI-funded learning network recently outlined key challenges and promising practices for improving the diversity and inclusion of patient representatives in research governance.

A PCORI-funded learning network recently developed an action-oriented, step-by-step roadmap to help patient-driven research communities define their value.