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Patient & Consumer Engagement

AcademyHealth is committed to supporting and fostering collaboration between consumers, patients, researchers and delivery systems leaders to improve the relevance and application of health services research. This section contains information on related programs as well as guidance and resources for researchers, patients and consumers.

Blog Post       The Relationship between Health and Place: Expanding Use of Place-Based Disadvantage Indices Beyond COVID-19

The Relationship between Health and Place: Expanding Use of Place-Based Disadvantage Indices Beyond COVID-19

While disadvantage indices are increasingly recognized as a valuable tool to help promote health and prioritize equity, future use of these tools must include investments in data infrastructure, community partnerships, and further evaluation.
Posted Nov 9, 2021 By Rachel Campbell-Baier , Caitlin Otter
Publication

The Blueprint: October 2021 Paradigm Project Updates

The latest edition of the Blueprint spotlights the Paradigm Project’s most recent report that examines open science and includes possible next steps for the field including developing a common open science terminology, creating an open science interest group, designing open science trainings, and leveraging federal law to increase access to data.
Posted
Publication

Reimagining Academic Incentives and Rewards in Health Services Research

This brief summarizes key points from a May 2021 meeting convened by AcademyHealth as part of the Paradigm Project to explore redesigning academic incentives to prioritize the social impact of health services research. The meeting underscored the importance of diversity, equity, and inclusion -- among other factors -- in incentivizing research that has impact.
Posted
Blog Post       Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials

Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials

The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
Posted Aug 23, 2021 By Helen Moniz
Blog Post       Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs

Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs

Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary Patient-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.