Patient & Consumer Engagement

Working in close partnership with patients, caregivers, researchers, and practitioners, Innovation and Value Initiative and AcademyHealth developed a new framework to recognize the broad health care economic impacts on patients and caregivers and aid researchers in addressing health disparities and creating value for patients and systems.

The final post of the Health Equity Meeting blog series explores federal priorities and initiatives undertaken by the Center for Medicaid and CHIP Services and Center for Medicare and Medicaid Innovation targeted towards advancing health equity in Medicaid.

Our third post in the Health Equity Blog series summarizes a discussion by researchers and policy administrators outlining opportunities for states to further health equity through managed care organizations. Representatives from Michigan also shared their efforts to embed health equity throughout their state’s Medicaid program.

A PCORI-funded learning network recently outlined key challenges and promising practices for improving the diversity and inclusion of patient representatives in research governance.

A PCORI-funded learning network recently developed an action-oriented, step-by-step roadmap to help patient-driven research communities define their value.

The latest edition of the Blueprint spotlights the Paradigm Project’s most recent report that examines open science and includes possible next steps for the field including developing a common open science terminology, creating an open science interest group, designing open science trainings, and leveraging federal law to increase access to data.

The September 2021 Blueprint spotlights the latest report from the Paradigm Project which summarizes an expert meeting exploring academic incentives and rewards, the role of diversity, equity and inclusion in that system, and options for better aligning incentives with health outcomes.

This brief summarizes key points from a May 2021 meeting convened by AcademyHealth as part of the Paradigm Project to explore redesigning academic incentives to prioritize the social impact of health services research. The meeting underscored the importance of diversity, equity, and inclusion -- among other factors -- in incentivizing research that has impact.