AcademyHealth is committed to supporting and fostering collaboration between consumers, patients, researchers and delivery systems leaders to improve the relevance and application of health services research. This section contains information on related programs as well as guidance and resources for researchers, patients and consumers.
The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
The August 2021 edition of the Blueprint spotlights the Paradigm Project’s panel at ARM and a blog post from Michael Gluck on lessons from the Paradigm Project and how AcademyHealth will use this work as the basis of a social movement to create real and lasting change in HSR.
Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary Patient-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.
The post highlights recent findings from a PCORI-funded project on how to increase the numbers and diversity of research participants by returning value, or benefits, to them and incorporating digital tools to sustainably maximize impact and scale of these efforts.
As the Annual Research Meeting draws to a close, this final post in our series highlighting how AcademyHealth is #MoreThanAMeeting describes our year-round work with several learning networks.
The March edition of the Paradigm Project’s newsletter, The Blueprint, continues the Project’s tradition of looking outside of HSR to inspire innovation by highlighting lessons learned from journalists, a scientist who developed a YouTube channel, and a new paper by Dr. Jonathan Grant for AcademyHealth’s Paradigm Project that reviews nine approaches from other fields to incentivizing academic research to bolster social impact, as well as five “provocations” for AcademyHealth to consider.
In a recent convening hosted by AcademyHealth, the ABIM Foundation, and the Donaghue Foundation, stakeholders explored what it takes to build successful partnerships between health systems leaders and researchers and how to deploy these partnerships to deliver high-value, equitable care.
The Paradigm Project’s newsletter, the Blueprint, kicks off 2021 with a spotlight on four Black women working to improve artificial intelligence, recommendations for research organizations on assessing the societal impact of their work, examples of stakeholder engagement in research, and other news relevant to improving health services research.
December’s edition of the Blueprint includes a new blog post by AcademyHealth Vice President Michael Gluck, as well as articles on the role of artificial intelligence in research and health care, trends in scientific publishing in 2020, strategies for effective health communication, and more.
