The Value of Patient-Driven Research and Ways to Sustain It
A PCORI-funded learning network recently developed an action-oriented, step-by-step roadmap to help patient-driven research communities define their value.
The Relationship between Health and Place: Expanding Use of Place-Based Disadvantage Indices Beyond COVID-19
While disadvantage indices are increasingly recognized as a valuable tool to help promote health and prioritize equity, future use of these tools must include investments in data infrastructure, community partnerships, and further evaluation.
Reimagining Academic Incentives and Rewards in Health Services Research
This brief summarizes key points from a May 2021 meeting convened by AcademyHealth as part of the Paradigm Project to explore redesigning academic incentives to prioritize the social impact of health services research. The meeting underscored the importance of diversity, equity, and inclusion -- among other factors -- in incentivizing research that has impact.
Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials
The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs
Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary Patient-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.
Health Affairs Blog Post Examines Digital Strategies to Drive Research Participation
The post highlights recent findings from a PCORI-funded project on how to increase the numbers and diversity of research participants by returning value, or benefits, to them and incorporating digital tools to sustainably maximize impact and scale of these efforts.
Advancing Trust Research to Improve Health and Well-Being
AcademyHealth and the ABIM Foundation partner to advance research to improve trust in the U.S. health care system.
#MoreThanAMeeting: Facilitating Learning Networks to Transform Policy and Practice
As the Annual Research Meeting draws to a close, this final post in our series highlighting how AcademyHealth is #MoreThanAMeeting describes our year-round work with several learning networks.
The Blueprint: March 2021 Paradigm Project Updates
The March edition of the Paradigm Project’s newsletter, The Blueprint, continues the Project’s tradition of looking outside of HSR to inspire innovation by highlighting lessons learned from journalists, a scientist who developed a YouTube channel, and a new paper by Dr. Jonathan Grant for AcademyHealth’s Paradigm Project that reviews nine approaches from other fields to incentivizing academic research to bolster social impact, as well as five “provocations” for AcademyHealth to consider.
Three Key Considerations for Building Successful Health System Leader and Researcher Partnerships
In a recent convening hosted by AcademyHealth, the ABIM Foundation, and the Donaghue Foundation, stakeholders explored what it takes to build successful partnerships between health systems leaders and researchers and how to deploy these partnerships to deliver high-value, equitable care.