Patient & Consumer Engagement

AcademyHealth is committed to supporting and fostering collaboration between consumers, patients, researchers and delivery systems leaders to improve the relevance and application of health services research. This section contains information on related programs as well as guidance and resources for researchers, patients and consumers.

Publication

The Blueprint: November 2020 Paradigm Project Updates

This edition of the Blueprint, the Paradigm Project’s newsletter, includes articles on the facilitators of and barriers to open science, compilations on battling misinformation and influencing public policy that reassert the importance of effective communication, and an example of patient-led research.

Posted Nov 13, 2020

Topics HSR Resources & Methods Patient & Consumer Engagement Translation, Dissemination & Implementation

Publication

The Blueprint: October 2020 Paradigm Project Updates

The October 2020 issue of the Blueprint, the Paradigm Project’s monthly newsletter, highlights resources on democratizing data, peer review and preprints, and the advantages and disadvantages of science communication via social media during the COVID-19 “infodemic.”

Posted Oct 14, 2020

Topics HSR Resources & Methods Translation, Dissemination & Implementation Patient & Consumer Engagement

Publication

The Blueprint: September 2020 Paradigm Project Updates

September’s issue of the Paradigm Project newsletter, The Blueprint, examines equity, community engagement in research, and innovations in data and methods.

Posted Sep 11, 2020

Topics Research Ethics & Governance HSR Workforce Development Patient & Consumer Engagement

Blog Post

Inaugural Health Data Impact Award Honors Work on Patients’ Rights to Access Personal Health Data

Award winner Deven McGraw guided the U.S. Department of Health and Human Services’ efforts to engage technology developers and patients with transparent and effective regulatory frameworks for the use of health data.

Posted Feb 11, 2020 By Lauren Adams, M.A.

Topics Patient & Consumer Engagement Using Health Data Data Sharing Health Datapalooza

Blog Post

Recognizing and Uplifting the Legitimacy of Patient Experts for Better Health Data Tools and Policies

In this final post in a series, ePatient and Security Researcher Andrea Downing highlights where we need to build professional skills and lower barriers for patient experts to be part of a team in health care.

Posted Feb 9, 2020 By Andrea Downing

Topics Patient & Consumer Engagement Using Health Data Health Datapalooza National Health Policy Conference

Past Event

Webinar: Navigating Low-Value Care: A Roadmap for Stakeholders

This webinar sought to define and deepen the understanding of low-value care and its importance to various stakeholders.

Date & Time January 15, 2020, 3:00 p.m. - 4:00 p.m. ET Location Online

Topics Patient & Consumer Engagement Costs & Payments Paying for Care

Blog Post

Focus on Patients is a Key to Reducing Low-Value Care

AcademyHealth staff reflect on the continuing need to advance research on low value care, following a Health Affairs blog post urging a focus on vulnerable populations in broader efforts to reduce low-value care.

Posted Dec 16, 2019 By Lisa Simpson, M.B., B.Ch., M.P.H., FAAP

Topics Patient & Consumer Engagement Delivering Better Care Costs & Payments

Blog Post

The Power of Person-Generated Health Data: Five Ways to Improve the Care Experience

AcademyHealth and a group of diverse stakeholders are working to develop a unifying framework for using person-generated health data in shared decision-making.

Posted Oct 31, 2019 By Margo Edmunds, Ph.D.

Topics Patient & Consumer Engagement Using Health Data Delivering Better Care

Blog Post

The First World Patient Safety Day: Time for a Moonshot for Health Services Research?

AcademyHealth member and Professor Hardeep Singh and Tejal Gandhi, chief clinical and safety officer at IHI, highlight three considerations for the field of health services research to advance patient safety.

Posted Sep 16, 2019 By Hardeep Singh, M.D., M.P.H. , Tejal Gandhi, M.D., M.P.H.

Topics Patient & Consumer Engagement Translation, Dissemination & Implementation Quality Improvement

Publication

Patient Centered Care Must Be Dynamic and Responsive

A physician, patient, caregiver and advocate offers her viewpoint on the barriers to patient centered care, including lack of understanding of the care giver role, insurance status, as well as bias, racism and social determinants of health.

Posted Sep 12, 2019

Topics Patient & Consumer Engagement Health Equity Hospitals & Health Systems