Patient & Consumer Engagement

Much of today’s health communication assumes public trust in institutions was lost and simply needs to be restored. But for many communities, that trust was never fully established. Researchers from Germany, the UK, and the U.S. suggest the challenge is not becoming more persuasive, but becoming more trustworthy.

2025 ARM theme leader Meredith Sugarman highlights sessions to attend in her theme Patient and Consumer Preferences and Needs.

Longtime Datapalooza supporter and data expert Fred Trotter recorded exclusive interviews with conference speakers and attendees on AcademyHealth’s YouTube channel highlighting topics such as use of AI tools, patient stories, efforts to improve health equity, as well as a special interview with our CEO Dr. Aaron Carroll.

A growing evidence base supports the value of incorporating the patient perspective into research studies and as part of routine care using patient-reported outcome measures (PROMs). The PROTEUS Consortium helps optimize the capture and communication of PROM data in research studies and clinical practice by providing free, publicly available, user-friendly tools and resources.

AcademyHealth President and CEO Aaron Carroll was recently featured on two podcasts in which he expanded upon critical public health challenges and how effective communication and involving those with lived experience a seat at the table leads to better health outcomes for all.

President and CEO Aaron Carroll discussed his vision for health services research at the June 2024 National Advisory Council Meeting for the Agency for Healthcare Research and Quality (AHRQ). This first post in a two-part series focused on his priorities in innovations in HSR methodology, supporting diversity, equity and inclusion, and incentivizing community and patient partnerships.

Posthumous honor celebrates the legacy of the beloved, boundary-breaking patient advocate who helped define AcademyHealth’s patient engagement efforts.

Working in close partnership with patients, caregivers, researchers, and practitioners, Innovation and Value Initiative and AcademyHealth developed a new framework to recognize the broad health care economic impacts on patients and caregivers and aid researchers in addressing health disparities and creating value for patients and systems.

The final post of the Health Equity Meeting blog series explores federal priorities and initiatives undertaken by the Center for Medicaid and CHIP Services and Center for Medicare and Medicaid Innovation targeted towards advancing health equity in Medicaid.