Patient & Consumer Engagement

OpenNotes initiative recognized at Health Datapalooza for efforts encouraging health care providers to share their visit notes with patients.

In working to prevent infectious disease, two familiar lessons rise to the surface: the importance of strengthening health systems, and the importance of empowering local leaders and communities. Both are key aspects of AcademyHealth’s mission to make health care and research better.

Phase I: Establishing Priorities

AcademyHealth manages the Robert Wood Johnson Foundation’s Building Trust and Mutual Respect to Improve Health Care program, which awarded eight research studies in 2018 to examine how to build trust and mutual respect to meet vulnerable patients’ health care needs.

In partnership with NORC at the University of Chicago (NORC), AcademyHealth supports this PCORI-funded project to build the capacity and foster the sustainability of patient and/or community-led organizations whose primary purpose is to enable research that is a priority to their communities.

With funding from a Eugene Washington PCORI Engagement Award, AcademyHealth and a group of diverse stakeholders are identifying evidence gaps related to person-generated data; setting priorities for future studies; and providing insights into personal technology preferences that can inform the development of future consumer-facing tools.