Patient & Consumer Engagement

AcademyHealth is committed to supporting and fostering collaboration between consumers, patients, researchers and delivery systems leaders to improve the relevance and application of health services research. This section contains information on related programs as well as guidance and resources for researchers, patients and consumers.

Blog Post

Opening Up Access to Research Findings

In celebration of international Open Access Week, editor of eGEMs’ section Better Decisions Together Jessica S. Ancker highlights progress in breaking down paywalls to make sure that research is available to everyone.

Posted Oct 24, 2018 By Jessica S. Ancker, MPH, PhD

Topics Patient & Consumer Engagement eGEMs

Publication

Stakeholders Identify Actions for Providers, Patients & Research Community to Advance Patient-Centered Care

This report summarizes ideas to advance patient-centered care from more than 70 patients and patient advocates, researchers, clinicians, health care system leaders, health policymakers, and other stakeholders convened by AcademyHealth in May 2018.

Posted Oct 15, 2018

Topics Patient & Consumer Engagement Delivering Better Care

Blog Post

Leveraging Patient Insights to Improve Genetic Test Reports

Interview with eGEMs author Jessica Goehringer about her new paper.

Posted Oct 4, 2018 By Jessica Goehringer

Topics Patient & Consumer Engagement Using Health Data eGEMs

Blog Post

Enhancing Online Portals Using Patient-Centered Interface Design

Interview with eGEMs author Traber Giardina about her new paper.

Posted Sep 27, 2018 By Dr. Traber Giardina

Topics Patient & Consumer Engagement Using Health Data eGEMs

Blog Post

Three Key Considerations for Leveraging Digital Health Tools to Support Patient Engagement

Susan Mbawuike of MITRE, an AcademyHealth organizational affiliate, shares perspectives on applying digital health tools to help patients engage in their health, expanding on discussions at the 2018 Health Datapalooza and Annual Research Meeting.

Posted Aug 30, 2018 By Susan Mbawuike

Topics Patient & Consumer Engagement Data Sources Analytic Tools

Blog Post

Patient-centered Approaches: Accepted & Increasingly Expected

Several particularly notable moments at AcademyHealth’s Annual Research Meeting suggested that patient-centered approaches will continue to feature, significantly and sustainably, as the field of health services research (HSR) advances.

Posted Aug 14, 2018 By Rachel Dungan, M.S.S.P.

Topics Patient & Consumer Engagement ARM

Blog Post

Is Trust the Missing Piece from the Health Care Cost Puzzle?

New research from Ishani Ganguli of Harvard Medical School examines the factors that can influence health care costs for high-cost patients and reveals a complex relationship between trust, patient activation and cost.

Posted Jul 10, 2018

Topics Patient & Consumer Engagement Costs & Payments

Blog Post

Who’s using health data from your fitbit and smartphone?

Jessica Skopac and Susan Mbawuike of MITRE, an AcademyHealth organizational affiliate, outline the importance of ethical standards for consumer-generated data use in healthcare in response to AcademyHealth's recent 2018 Health Datapalooza conference.

Posted Jun 13, 2018 By Susan Mbawuike, Jessica Skopac

Topics Patient & Consumer Engagement Data Sharing Health Datapalooza

Blog Post

Taking action to put the patient at the center of the healthcare system

Responding to CMS Administrator Seema Verma’s remarks at Datapalooza in April, Kim Warren of MITRE, an AcademyHealth organizational affiliate, highlights four areas where CMS action could expand patient access to data.

Posted Jun 6, 2018 By Kimberly Warren

Topics Patient & Consumer Engagement Data Sharing Health Datapalooza

Publication

How AcademyHealth Worked to Make Health and Health Care Better for Everybody from 2015-2017

This 2015-2017 Progress Report details how AcademyHealth worked with our members, partners, and funders to make both health care and research better all with the aim of making health and health care better for everybody.

Posted Feb 22, 2018

Topics Advocacy HSR Resources & Methods HSR Workforce Development Patient & Consumer Engagement Research Ethics & Governance Translation, Dissemination & Implementation Delivering Better Care Using Health Data Paying for Care Building Healthy Communities