Engagement Science: Introducing Inclusive Research Practices & Potential Impacts
In this first of a six-part series that explores evidence-based engagement in health research, a group of researchers traces the emergence of engagement science.
Opening Up Access to Research Findings
In celebration of international Open Access Week, editor of eGEMs’ section Better Decisions Together Jessica S. Ancker highlights progress in breaking down paywalls to make sure that research is available to everyone.
Stakeholders Identify Actions for Providers, Patients & Research Community to Advance Patient-Centered Care
This report summarizes ideas to advance patient-centered care from more than 70 patients and patient advocates, researchers, clinicians, health care system leaders, health policymakers, and other stakeholders convened by AcademyHealth in May 2018.
Leveraging Patient Insights to Improve Genetic Test Reports
Interview with eGEMs author Jessica Goehringer about her new paper.
Enhancing Online Portals Using Patient-Centered Interface Design
Interview with eGEMs author Traber Giardina about her new paper.
Three Key Considerations for Leveraging Digital Health Tools to Support Patient Engagement
Susan Mbawuike of MITRE, an AcademyHealth organizational affiliate, shares perspectives on applying digital health tools to help patients engage in their health, expanding on discussions at the 2018 Health Datapalooza and Annual Research Meeting.
Patient-centered Approaches: Accepted & Increasingly Expected
Several particularly notable moments at AcademyHealth’s Annual Research Meeting suggested that patient-centered approaches will continue to feature, significantly and sustainably, as the field of health services research (HSR) advances.
Is Trust the Missing Piece from the Health Care Cost Puzzle?
New research from Ishani Ganguli of Harvard Medical School examines the factors that can influence health care costs for high-cost patients and reveals a complex relationship between trust, patient activation and cost.
Who’s using health data from your fitbit and smartphone?
Jessica Skopac and Susan Mbawuike of MITRE, an AcademyHealth organizational affiliate, outline the importance of ethical standards for consumer-generated data use in healthcare in response to AcademyHealth's recent 2018 Health Datapalooza conference.
Taking action to put the patient at the center of the healthcare system
Responding to CMS Administrator Seema Verma’s remarks at Datapalooza in April, Kim Warren of MITRE, an AcademyHealth organizational affiliate, highlights four areas where CMS action could expand patient access to data.