2022 Health Datapalooza and National Health Policy Conference
A gathering for health data and policy innovation.
The Blueprint: November 2021 Updates
The November edition of the Blueprint provides an update on the end of the Paradigm Project and continuation of efforts to create real and lasting change in how we do, communicate, and use HSR.
Highlight Reel: Reimagining Public Health
With the 2022 Call for Abstracts now open, watch the video reel highlighting key points from the 2021 Annual Research Meeting closing plenary in which experts discussed revamping the public health system by investing in data infrastructure, a diverse workforce, and research.
Navigating the Ethics of a New Research Landscape: Emerging Data, Methods, and Practices
Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.
New Research Proposes Metrics, Measures, and Models Promoting Health Equity
The Preparedness and Treatment Equity Coalition (PTEC) is supporting four teams develop implementable, data-driven research to decrease inequity in the health care system. These projects were identified in partnership with AcademyHealth and a work group comprised of PTEC members and partners.
The Relationship between Health and Place: Expanding Use of Place-Based Disadvantage Indices Beyond COVID-19
While disadvantage indices are increasingly recognized as a valuable tool to help promote health and prioritize equity, future use of these tools must include investments in data infrastructure, community partnerships, and further evaluation.
It’s Time to Properly Fund Gun Violence and Gun Policy Research
For more than two decades the federal government deterred research into this leading cause of preventable death. A new report estimates the cost of closing the knowledge gap.
Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials
The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs
Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary Patient-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.
Study Finds Increased Use of Medications for OUD among Medicaid Enrollees in 11 States
Leveraging data from AcademyHealth’s Medicaid Outcomes Distributed Research Network (MODRN), new research finds substantial improvements in use of medications for OUD. Improved understanding of the factors driving this increase is crucial to closing remaining treatment gaps.