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Using Health Data

The explosion of health-related data has created new opportunities to understand how health care is delivered, paid for and preserved. Health services evidence helps us understand how to identify, validate, share and analyze data to improve health.

Publication

Navigating the Ethics of a New Research Landscape: Emerging Data, Methods, and Practices

Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.
Posted
Blog Post

New Research Proposes Metrics, Measures, and Models Promoting Health Equity

The Preparedness and Treatment Equity Coalition (PTEC) is supporting four teams develop implementable, data-driven research to decrease inequity in the health care system. These projects were identified in partnership with AcademyHealth and a work group comprised of PTEC members and partners.
Blog Post       The Relationship between Health and Place: Expanding Use of Place-Based Disadvantage Indices Beyond COVID-19

The Relationship between Health and Place: Expanding Use of Place-Based Disadvantage Indices Beyond COVID-19

While disadvantage indices are increasingly recognized as a valuable tool to help promote health and prioritize equity, future use of these tools must include investments in data infrastructure, community partnerships, and further evaluation.
Posted Nov 9, 2021 By Rachel Campbell-Baier , Caitlin Otter
Blog Post       Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials

Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials

The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
Posted Aug 23, 2021 By Helen Moniz
Blog Post       Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs

Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs

Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary Patient-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.