Using Health Data

In this interview, a representative from the Arizona State University Community Research for Health Equity grant reflects on the value of community-led research and how their work will inform changes in the health care system.

Following CMS announcement of data access restrictions in February, AcademyHealth launched an aggressive, and successful, advocacy effort to support the needs of researchers and patients.

A new study in our partner journal the Milbank Quarterly finds support for using identifiable data for public health and research purposes among the public generally, but also highlights a unique decline in comfort among African Americans.

Sponsored by a grant from the Gordon and Betty Moore Foundation, and in partnership with Innovation Horizons, AcademyHealth conducted a literature review on the use of patient-generated data to assess the capability of the internet as a tool to inform clinical diagnosis practices.

Sponsored by a grant from the Gordon and Betty Moore Foundation, AcademyHealth is pleased to announce that three pilot projects have been awarded funding to examine the use of patients’ internet search data as a data source and tool to inform clinical diagnosis practices.

AcademyHealth member and HDLI panelist Dr. Kellan Baker and Caroline Medina, data equity experts at Whitman-Walker Institute, share why it’s critical for the field of health services research to collect and use high-quality data on sexual orientation and gender identity to guide the provision of optimal care for all and to close LGBTQ population health disparities.

In these interviews, the grantees reflect at the midpoint of their studies on the value of community-led research and how their work will inform changes in the health care system.

Health Data Leadership Institute panelist and CEO of Manifest MedEx, Erica Galvez, highlights the role of collaborations and partnerships to improve public health.

On March 6, reproductive health and justice experts shared their thoughts on the role of health services research in examining the wide-ranging impact of the Dobbs decision. These are Dr. Monica McLemore’s remarks on the importance of community-engaged approaches to conduct this research.