Data Sources

The second in a five-part interview series, AcademyHealth and others involved in our Health Data for Action program reflect on this journey to democratize data, and how the funded researchers were able to find ways to create fairer, more effective health solutions that work for everyone.

The first in a five-part video interview series, AcademyHealth and partners in our Health Data for Action program reflect on our journey to democratize data, and how the funded researchers were able to find ways to create fairer, more effective health solutions that work for everyone.

In an era where real-world data platforms hold the transformative potential to illuminate the complexities of autism, the imperative of building trust and ethical integrity in research has never been more critical.

This latest installment in our data series explores the crucial role of data for upholding the principles of scientific integrity—historically a shared priority among those who make decisions about federal support for data access, maintenance, and quality.

The first installment of our blog series on open data highlights its critical role in driving public health and scientific research and explores the threats it faces despite longstanding bipartisan support to make federally-funded data freely available to the public.

One of the key datasets for maternal and child health, The Pregnancy Risk Assessment Monitoring System (PRAMS), has been taken offline and there is uncertainty if it will be made accessible again. The continuation of PRAMS, either at the federal or state level, is necessary to monitor and improve maternal and child health outcomes.

PCORI has awarded over $3 billion since 2010. In a recent organizational briefing, Director Cook discussed funding priorities going forward and how researchers can take advantage of PCORI resources.