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Data Sources

From wearables to electronic medical records, data on health and health care has myriad sources and uses. AcademyHealth programs and the community of health services researchers are looking at evidence on how to evaluate and use data from a wide variety of sources.

Blog Post       Examining EHR Availability and Patient Access: Our NCHS/AcademyHealth Data Visualization Challenge Experience

Examining EHR Availability and Patient Access: Our NCHS/AcademyHealth Data Visualization Challenge Experience

2022 NCHS/AcademyHealth Data Visualization Challenge winners used publicly available data to explore patterns in electronic health record availability and access, and how social determinants of health may impact access.
Blog Post       Efforts to Improve EHR Data for Maternal Health Research Featured in Healthcare IT News

Efforts to Improve EHR Data for Maternal Health Research Featured in Healthcare IT News

Standardization of maternal health data in electronic health records (EHR) will help researchers examine factors that impact health outcomes from pre-pregnancy to postpartum care and beyond. A new article in Healthcare IT News outlines a collaborative approach that led to the development of an implementation guide to support mapping maternal health data across clinical areas and use cases.
Posted Jun 15, 2022 By Lauren Adams, M.A.
Publication

Navigating the Ethics of a New Research Landscape: Emerging Data, Methods, and Practices

Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.
Posted
Blog Post       Enhancing Patient-Centered Outcomes Research Data Infrastructure to Address the Opioid Crisis

Enhancing Patient-Centered Outcomes Research Data Infrastructure to Address the Opioid Crisis

The severity and the complexity of the opioid crisis require research that is both patient-centered and supported by robust data infrastructure. Several U.S. Department of Health and Human Services (HHS) projects are working across agencies to build the nation’s capacity for exactly this kind of research.
Posted Feb 17, 2021 By Prashila Dullabh, M.D.