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Data Sharing

Health care data are generated and stored in a wide variety of formats. How can data users access and share data in order to learn from it? Health services researchers and data users are looking at data sharing to improve health and health care.

Blog Post       Trust-Building and Health Data Sharing across Stakeholder Groups: The Value of Convening

Trust-Building and Health Data Sharing across Stakeholder Groups: The Value of Convening

A report from the National Academy of Medicine (NAM) found that a lack of trust was a key barrier to data sharing. Expert panelists from Cincinnati Children’s Hospital, the National Partnership for Women and Families, PCORI, and the NAM delved into this topic at the recent Health Datapalooza and National Health Policy Conference.
Posted Apr 1, 2021 By Sarah Greene, M.P.H.
Blog Post       Experts in Child Health Services Research Reflect on 2020 and Look Ahead to 2021

Experts in Child Health Services Research Reflect on 2020 and Look Ahead to 2021

Members of AcademyHealth’s Child Health Services Research Interest Group Advisory Committee reflect on five key areas of advancement of Child HSR during 2020, and consider the COVID-19 pandemic’s impact on children.
Blog Post       Enhancing Patient-Centered Outcomes Research Data Infrastructure to Address the Opioid Crisis

Enhancing Patient-Centered Outcomes Research Data Infrastructure to Address the Opioid Crisis

The severity and the complexity of the opioid crisis require research that is both patient-centered and supported by robust data infrastructure. Several U.S. Department of Health and Human Services (HHS) projects are working across agencies to build the nation’s capacity for exactly this kind of research.
Posted Feb 17, 2021 By Prashila Dullabh, M.D.
Blog Post

New Initiative Aims to Build a Model Open COVID-19 Patient Data Registry Network

The Robert Wood Johnson Foundation’s Health Data for Action program, managed by AcademyHealth, is supporting a collaboration between Health Care Cost Institute (HCCI), CareJourney, and a network of health systems to increase the availability of standardized, actionable information on COVID-19 impact and progression.
Posted Apr 10, 2020 By Niall Brennan, B.A., M.P.P.