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Data Sharing

Health care data are generated and stored in a wide variety of formats. How can data users access and share data in order to learn from it? Health services researchers and data users are looking at data sharing to improve health and health care.

Blog Post

Building Data Capacity for Patient-Centered Outcomes Research: Priorities for the Next Decade

A recent report from the National Academies of Sciences, Engineering, and Medicine helps the Office of the Assistant Secretary for Planning and Evaluation (ASPE) with its work to enhance the data infrastructure for patient-centered outcomes research, prioritizing a holistic view of an individual’s health, data linkages and more.
Blog Post       Despite Progress, We Still Need Innovation in Health Data and Policy

Despite Progress, We Still Need Innovation in Health Data and Policy

This year’s Health Datapalooza, taking place in February 2023, builds on a nearly 15-year legacy of data policy and innovation. Greg Downing traces this forum’s unique history, highlighting its beginning as a catalyst for data liberation to the current focus on inspiring innovative data application to transform health and health care.
Posted Nov 30, 2022 By Gregory Downing, D.O., Ph.D.
Blog Post

Bringing Data to Life for the NCHS/AcademyHealth Data Visualization Challenge

2021 NCHS/AcademyHealth Data Visualization Challenge Winners highlight the benefits of pulling data from multiple national data sources to build a data visualization demonstrating the disproportionate impact of the U.S. gun crisis on young Black men in urban areas.
Publication

Navigating the Ethics of a New Research Landscape: Emerging Data, Methods, and Practices

Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.
Posted
Publication

How Open Science Practices May Increase the Quality, Timeliness, and Impact of Health Services Research

Health services researchers and others with expertise in open science issues suggest several next steps for the field including developing a common open science terminology, creating an open science interest group, designing open science trainings, and leveraging federal law to increase access to data.
Posted
Blog Post       Trust-Building and Health Data Sharing across Stakeholder Groups: The Value of Convening

Trust-Building and Health Data Sharing across Stakeholder Groups: The Value of Convening

A report from the National Academy of Medicine (NAM) found that a lack of trust was a key barrier to data sharing. Expert panelists from Cincinnati Children’s Hospital, the National Partnership for Women and Families, PCORI, and the NAM delved into this topic at the recent Health Datapalooza and National Health Policy Conference.
Posted Apr 1, 2021 By Sarah Greene, M.P.H.
Blog Post       Experts in Child Health Services Research Reflect on 2020 and Look Ahead to 2021

Experts in Child Health Services Research Reflect on 2020 and Look Ahead to 2021

Members of AcademyHealth’s Child Health Services Research Interest Group Advisory Committee reflect on five key areas of advancement of Child HSR during 2020, and consider the COVID-19 pandemic’s impact on children.