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Data Sharing

Health care data are generated and stored in a wide variety of formats. How can data users access and share data in order to learn from it? Health services researchers and data users are looking at data sharing to improve health and health care.

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Blog Post

Bringing Data to Life for the NCHS/AcademyHealth Data Visualization Challenge

2021 NCHS/AcademyHealth Data Visualization Challenge Winners highlight the benefits of pulling data from multiple national data sources to build a data visualization demonstrating the disproportionate impact of the U.S. gun crisis on young Black men in urban areas.
Posted Oct 3, 2022 By Lauren E. Russell, M.P.P., Sumin Jeong, Sirin Yaemsiri, Ph.D., M.S.P.H., Ernest Moy, M.D., M.P.H.
Topics Using Health Data Health Equity Data Sharing
Publication

Navigating the Ethics of a New Research Landscape: Emerging Data, Methods, and Practices

Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.
Posted
Topics Research Ethics & Governance HSR Resources & Methods Using Health Data Data Sources Data Sharing
Publication

How Open Science Practices May Increase the Quality, Timeliness, and Impact of Health Services Research

Health services researchers and others with expertise in open science issues suggest several next steps for the field including developing a common open science terminology, creating an open science interest group, designing open science trainings, and leveraging federal law to increase access to data.
Posted
Topics HSR Resources & Methods Translation, Dissemination & Implementation Research Ethics & Governance Data Sharing
Blog Post Trust-Building and Health Data Sharing across Stakeholder Groups: The Value of Convening

Trust-Building and Health Data Sharing across Stakeholder Groups: The Value of Convening

A report from the National Academy of Medicine (NAM) found that a lack of trust was a key barrier to data sharing. Expert panelists from Cincinnati Children’s Hospital, the National Partnership for Women and Families, PCORI, and the NAM delved into this topic at the recent Health Datapalooza and National Health Policy Conference.
Posted Apr 1, 2021 By Sarah Greene, M.P.H.
Topics Data Sharing Using Health Data Public & Population Health Hospitals & Health Systems National Health Policy Conference Health Datapalooza
Blog Post Experts in Child Health Services Research Reflect on 2020 and Look Ahead to 2021

Experts in Child Health Services Research Reflect on 2020 and Look Ahead to 2021

Members of AcademyHealth’s Child Health Services Research Interest Group Advisory Committee reflect on five key areas of advancement of Child HSR during 2020, and consider the COVID-19 pandemic’s impact on children.
Posted Mar 9, 2021 By Erin M. Mobley, Ph.D., M.P.H., Kathryn Riman, Ph.D., R.N., Denise Dougherty, Ph.D., Ilene L. Hollin, Ph.D., M.P.H., Gregory Stevens, Ph.D., M.H.S., Olivia Lindly, Ph.D., M.P.H.
Topics Building Healthy Communities Health Equity Public & Population Health Delivering Better Care Access to Care Using Health Data Data Sharing
Blog Post Enhancing Patient-Centered Outcomes Research Data Infrastructure to Address the Opioid Crisis

Enhancing Patient-Centered Outcomes Research Data Infrastructure to Address the Opioid Crisis

The severity and the complexity of the opioid crisis require research that is both patient-centered and supported by robust data infrastructure. Several U.S. Department of Health and Human Services (HHS) projects are working across agencies to build the nation’s capacity for exactly this kind of research.
Posted Feb 17, 2021 By Prashila Dullabh, M.D.
Topics Using Health Data Data Sharing Data Sources Public & Population Health Health Datapalooza