2020 Health Data Leadership Institute - Fall
Canceled
Largest Real-World Database for Pro Bono COVID-19 Research Goes Live
A coalition of organizations is offering free access to the largest real-world data sets in the U.S. to support rapid COVID-19 research.
New Initiative Aims to Build a Model Open COVID-19 Patient Data Registry Network
The Robert Wood Johnson Foundation’s Health Data for Action program, managed by AcademyHealth, is supporting a collaboration between Health Care Cost Institute (HCCI), CareJourney, and a network of health systems to increase the availability of standardized, actionable information on COVID-19 impact and progression.
Inaugural Health Data Impact Award Honors Work on Patients’ Rights to Access Personal Health Data
Award winner Deven McGraw guided the U.S. Department of Health and Human Services’ efforts to engage technology developers and patients with transparent and effective regulatory frameworks for the use of health data.
2020 Health Datapalooza
Co-located with the National Health Policy Conference
Webinar: Closing the Data Gap
This webinar explored how Dataworks closes a key data gap by providing access to near real-time EMR data to help researchers better understand the health care burden of patients.
States Identify Top Medicaid Policy Areas for Future Multi-state Data Analysis
Results from an AcademyHealth investigation highlight four shared Medicaid policy priorities across 22 states: substance use disorder, behavioral health integration, maternal mortality, and social determinants of health.
An Overview of the Medicaid Outcomes Distributed Research Network
The Medicaid Outcomes Distributed Research Network (MODRN) supports evidence-based state health policy and practice with a focus on transforming Medicaid-based health care, including improving the patient experience with care, improving the health of populations, and reducing the per capita cost of health care.
2019 Health Data Leadership Institute
Leveraging data and navigating federal policy for health system transformation.
Health Care’s Failure to Share Data: An Issue of Culture or a Crisis of Integrity?
Health Data Leadership Institute speaker Laura L. Adams reflects on the barriers to better health data sharing, calling for stakeholders to find the will and the way to advance data sharing.