Informatics Tools and Approaches To Facilitate the Use of Electronic Data for CER, PCOR, and QI: Resources Developed by the PROSPECT, DRN, and Enhanced Registry Projects
EDM Forum issue brief.
Electronic Data Methods (EDM) Forum Overview
This brief profiles the EDM Forum, an initiative to collect, synthesize, and share lessons learned from research projects that are developing and using electronic clinical data to conduct comparative effectiveness research and patient-centered outcomes research.
Approaches to Using Protected Health Information (PHI) for Patient-Centered Outcomes Research (PCOR): Regulatory Requirements, De-identification Strategies, and Policy
Registry of Patient Registries
Patient registries offer significant opportunities for conducting clinical research.
Evidence Use in Medicaid: Understanding the Impact of Long COVID on Vulnerable Populations
With support from the Patient Centered Outcomes Research Institute (PCORI), AcademyHealth’s Evidence-Informed State Health Policy Institute is developing a research agenda and action-oriented research toolkit that identifies and prioritizes patient-centered outcomes research (PCOR) questions related to the impacts of long COVID.
Enhancing Systems of Care for Children with Medical Complexity (CMC) Coordinating Center
AcademyHealth, in partnership with Boston Children’s Hospital and FamilyVoices, is leading a Coordinating Center to support five Health Resources & Services Administration (HSRA)-funded demonstration sites to optimize the health and well-being for children with medical complexity and their families while also achieving health equity for these populations
The Medicaid Outcomes Distributed Research Network (MODRN)
AcademyHealth's Evidence-Informed State Health Policy Institute supports this research network that enables participating states to harness multi-state Medicaid data to address issues of national public health importance and measure the impact of innovative policies and interventions.
Public Health Systems Research
AcademyHealth’s public and population health portfolio offers training, scholarships and resources for researchers, facilitates connections with policymakers, and stimulates discussions around the challenges and opportunities faced by the evolving public health system – from organization and financing to delivery and impact.
Analysis of Use of Non-Opioid Controlled Substances and Treatment of Non-Opioid Substances Use Disorders Among Medicaid Beneficiaries
With support from the Medicaid and CHIP Payment & Access Commission, AcademyHealth’s Evidence-Informed State Health Policy Institute, in collaboration with the University of Pittsburgh, is exploring the use of non-opioid controlled substances and the treatment of non-opioid substance use disorders.