Using Electronic Health Data for Research and Quality Improvement: A Summary of Innovations, Achievements, and Lessons Learned from the Electronic Data Methods (EDM) Forum, 2010–2013
Electronic Data Methods (EDM) Forum Phase I Publications and Products
Informatics Tools and Approaches To Facilitate the Use of Electronic Data for CER, PCOR, and QI: Resources Developed by the PROSPECT, DRN, and Enhanced Registry Projects
EDM Forum issue brief.
Electronic Data Methods (EDM) Forum Overview
This brief profiles the EDM Forum, an initiative to collect, synthesize, and share lessons learned from research projects that are developing and using electronic clinical data to conduct comparative effectiveness research and patient-centered outcomes research.
Approaches to Using Protected Health Information (PHI) for Patient-Centered Outcomes Research (PCOR): Regulatory Requirements, De-identification Strategies, and Policy
Health Data Privacy and Security
Since 2016, AcademyHealth has worked with the California Health Care Foundation to assist digital health market entrants understand their responsibilities under and effectively navigate the Privacy and Security Rules of the Health Insurance Portability and Accountability Act (HIPAA) as well as other federal and California privacy and security laws.
Registry of Patient Registries
Patient registries offer significant opportunities for conducting clinical research.
Evidence Use in Medicaid: Understanding the Impact of Long COVID on Vulnerable Populations
With support from the Patient Centered Outcomes Research Institute (PCORI), AcademyHealth’s Evidence-Informed State Health Policy Institute is developing a research agenda and action-oriented research toolkit that identifies and prioritizes patient-centered outcomes research (PCOR) questions related to the impacts of long COVID.
Enhancing Systems of Care for Children with Medical Complexity (CMC) Coordinating Center
AcademyHealth, in partnership with Boston Children’s Hospital and FamilyVoices, is leading a Coordinating Center to support five Health Resources & Services Administration (HSRA)-funded demonstration sites to optimize the health and well-being for children with medical complexity and their families while also achieving health equity for these populations