Health care data are generated and stored in a wide variety of formats. How can data users access and share data in order to learn from it? Health services researchers and data users are looking at data sharing to improve health and health care.
This brief profiles the EDM Forum, an initiative to collect, synthesize, and share lessons learned from research projects that are developing and using electronic clinical data to conduct comparative effectiveness research and patient-centered outcomes research.
Since 2016, AcademyHealth has worked with the California Health Care Foundation to assist digital health market entrants understand their responsibilities under and effectively navigate the Privacy and Security Rules of the Health Insurance Portability and Accountability Act (HIPAA) as well as other federal and California privacy and security laws.
With support from the Patient Centered Outcomes Research Institute (PCORI), AcademyHealth’s Evidence-Informed State Health Policy Institute is developing a research agenda and action-oriented research toolkit that identifies and prioritizes patient-centered outcomes research (PCOR) questions related to the impacts of long COVID.
AcademyHealth, in partnership with Boston Children’s Hospital and FamilyVoices, is leading a Coordinating Center to support five Health Resources & Services Administration (HSRA)-funded demonstration sites to optimize the health and well-being for children with medical complexity and their families while also achieving health equity for these populations