Health care data are generated and stored in a wide variety of formats. How can data users access and share data in order to learn from it? Health services researchers and data users are looking at data sharing to improve health and health care.
Health services researchers and others with expertise in open science issues suggest several next steps for the field including developing a common open science terminology, creating an open science interest group, designing open science trainings, and leveraging federal law to increase access to data.
A report from the National Academy of Medicine (NAM) found that a lack of trust was a key barrier to data sharing. Expert panelists from Cincinnati Children’s Hospital, the National Partnership for Women and Families, PCORI, and the NAM delved into this topic at the recent Health Datapalooza and National Health Policy Conference.
Members of AcademyHealth’s Child Health Services Research Interest Group Advisory Committee reflect on five key areas of advancement of Child HSR during 2020, and consider the COVID-19 pandemic’s impact on children.
The severity and the complexity of the opioid crisis require research that is both patient-centered and supported by robust data infrastructure. Several U.S. Department of Health and Human Services (HHS) projects are working across agencies to build the nation’s capacity for exactly this kind of research.
The Medicaid Outcomes Distributed Research Network (MODRN) supports evidence-based state health policy and practice with a focus on transforming Medicaid-based health care, including improving the patient experience with care, improving the health of populations, and reducing the per capita cost of health care.
The Robert Wood Johnson Foundation’s Health Data for Action program, managed by AcademyHealth, is supporting a collaboration between Health Care Cost Institute (HCCI), CareJourney, and a network of health systems to increase the availability of standardized, actionable information on COVID-19 impact and progression.
Award winner Deven McGraw guided the U.S. Department of Health and Human Services’ efforts to engage technology developers and patients with transparent and effective regulatory frameworks for the use of health data.
This webinar explored how Dataworks closes a key data gap by providing access to near real-time EMR data to help researchers better understand the health care burden of patients.
Date & Time January 15, 2020, 1:30 p.m. - 2:30 p.m. ET
Location Online
