The New Era of Investigator Management of Data and Information
Greg Downing spoke with researchers and investigators about the implementation and impact of NIH policy changes regarding data management and sharing.
Healthcare IT Today Interview with Lucia Savage: What Sets Health Datapalooza Apart from the IT Crowd
In a new Healthcare IT Today interview, health IT leader Lucia Savage details what to expect at the 2023 Health Datapalooza.
Building Data Capacity for Patient-Centered Outcomes Research: Priorities for the Next Decade
A recent report from the National Academies of Sciences, Engineering, and Medicine helps the Office of the Assistant Secretary for Planning and Evaluation (ASPE) with its work to enhance the data infrastructure for patient-centered outcomes research, prioritizing a holistic view of an individual’s health, data linkages and more.
Despite Progress, We Still Need Innovation in Health Data and Policy
This year’s Health Datapalooza, taking place in February 2023, builds on a nearly 15-year legacy of data policy and innovation. Greg Downing traces this forum’s unique history, highlighting its beginning as a catalyst for data liberation to the current focus on inspiring innovative data application to transform health and health care.
Bringing Data to Life for the NCHS/AcademyHealth Data Visualization Challenge
2021 NCHS/AcademyHealth Data Visualization Challenge Winners highlight the benefits of pulling data from multiple national data sources to build a data visualization demonstrating the disproportionate impact of the U.S. gun crisis on young Black men in urban areas.
2022 Health Datapalooza and National Health Policy Conference
A gathering for health data and policy innovation.
The Blueprint: November 2021 Updates
The November edition of the Blueprint provides an update on the end of the Paradigm Project and continuation of efforts to create real and lasting change in how we do, communicate, and use HSR.
Navigating the Ethics of a New Research Landscape: Emerging Data, Methods, and Practices
Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.
How Open Science Practices May Increase the Quality, Timeliness, and Impact of Health Services Research
Health services researchers and others with expertise in open science issues suggest several next steps for the field including developing a common open science terminology, creating an open science interest group, designing open science trainings, and leveraging federal law to increase access to data.
Trust-Building and Health Data Sharing across Stakeholder Groups: The Value of Convening
A report from the National Academy of Medicine (NAM) found that a lack of trust was a key barrier to data sharing. Expert panelists from Cincinnati Children’s Hospital, the National Partnership for Women and Families, PCORI, and the NAM delved into this topic at the recent Health Datapalooza and National Health Policy Conference.