Blog Post
In an era where real-world data platforms hold the transformative potential to illuminate the complexities of autism, the imperative of building trust and ethical integrity in research has never been more critical.
Blog Post
This latest installment in our data series explores the crucial role of data for upholding the principles of scientific integrity—historically a shared priority among those who make decisions about federal support for data access, maintenance, and quality.
Blog Post
The first installment of our blog series on open data highlights its critical role in driving public health and scientific research and explores the threats it faces despite longstanding bipartisan support to make federally-funded data freely available to the public.
Blog Post
One of the key datasets for maternal and child health, The Pregnancy Risk Assessment Monitoring System (PRAMS), has been taken offline and there is uncertainty if it will be made accessible again. The continuation of PRAMS, either at the federal or state level, is necessary to monitor and improve maternal and child health outcomes.
Blog Post
Old approaches to informing decision-makers with health system evidence have often moved too slowly and presented a single form of evidence
Blog Post
2022 NCHS/AcademyHealth Data Visualization Challenge winners used publicly available data to explore patterns in electronic health record availability and access, and how social determinants of health may impact access.
Blog Post
The winners of the 2022 NCHS/AcademyHealth Data Visualization Challenge discuss the benefits of interdisciplinary collaboration using national data sources to illustrate the intersectionality of food insecurity, disability status, and racial disparities
Blog Post
PCORI has awarded over $3 billion since 2010. In a recent organizational briefing, Director Cook discussed funding priorities going forward and how researchers can take advantage of PCORI resources.
Blog Post
Standardization of maternal health data in electronic health records (EHR) will help researchers examine factors that impact health outcomes from pre-pregnancy to postpartum care and beyond. A new article in Healthcare IT News outlines a collaborative approach that led to the development of an implementation guide to support mapping maternal health data across clinical areas and use cases.
Past Event
A gathering for health data and policy innovation.
Date & Time April 4-5, 2022
Location Crystal Gateway Marriott | Arlington, VA