From wearables to electronic medical records, data on health and health care has myriad sources and uses. AcademyHealth programs and the community of health services researchers are looking at evidence on how to evaluate and use data from a wide variety of sources.
In September 2025, AcademyHealth and its partners secured a major legal victory restoring federal health data removed earlier this year. This fact sheet summarizes the case background, settlement terms, and the implications for researchers, clinicians, and communities.
In the fifth video of a five-part interview series, AcademyHealth and others involved in our Health Data for Action program reflect on this journey to democratize data, and how the funded researchers were able to find ways to create fairer, more effective health solutions that work for everyone.
The fourth in a five-part interview series, AcademyHealth and others involved in our Health Data for Action program reflect on this journey to democratize data, and how the funded researchers were able to find ways to create fairer, more effective health solutions that work for everyone.
In the third of a five-part interview series, AcademyHealth and others involved in our Health Data for Action program reflect on this journey to democratize data, and how the funded researchers were able to find ways to create fairer, more effective health solutions that work for everyone.
The second in a five-part interview series, AcademyHealth and others involved in our Health Data for Action program reflect on this journey to democratize data, and how the funded researchers were able to find ways to create fairer, more effective health solutions that work for everyone.
The first in a five-part video interview series, AcademyHealth and partners in our Health Data for Action program reflect on our journey to democratize data, and how the funded researchers were able to find ways to create fairer, more effective health solutions that work for everyone.
In an era where real-world data platforms hold the transformative potential to illuminate the complexities of autism, the imperative of building trust and ethical integrity in research has never been more critical.
This latest installment in our data series explores the crucial role of data for upholding the principles of scientific integrity—historically a shared priority among those who make decisions about federal support for data access, maintenance, and quality.
The first installment of our blog series on open data highlights its critical role in driving public health and scientific research and explores the threats it faces despite longstanding bipartisan support to make federally-funded data freely available to the public.
One of the key datasets for maternal and child health, The Pregnancy Risk Assessment Monitoring System (PRAMS), has been taken offline and there is uncertainty if it will be made accessible again. The continuation of PRAMS, either at the federal or state level, is necessary to monitor and improve maternal and child health outcomes.