From wearables to electronic medical records, data on health and health care has myriad sources and uses. AcademyHealth programs and the community of health services researchers are looking at evidence on how to evaluate and use data from a wide variety of sources.
This latest installment in our data series explores the crucial role of data for upholding the principles of scientific integrity—historically a shared priority among those who make decisions about federal support for data access, maintenance, and quality.
The first installment of our blog series on open data highlights its critical role in driving public health and scientific research and explores the threats it faces despite longstanding bipartisan support to make federally-funded data freely available to the public.
One of the key datasets for maternal and child health, The Pregnancy Risk Assessment Monitoring System (PRAMS), has been taken offline and there is uncertainty if it will be made accessible again. The continuation of PRAMS, either at the federal or state level, is necessary to monitor and improve maternal and child health outcomes.
2022 NCHS/AcademyHealth Data Visualization Challenge winners used publicly available data to explore patterns in electronic health record availability and access, and how social determinants of health may impact access.
The winners of the 2022 NCHS/AcademyHealth Data Visualization Challenge discuss the benefits of interdisciplinary collaboration using national data sources to illustrate the intersectionality of food insecurity, disability status, and racial disparities
PCORI has awarded over $3 billion since 2010. In a recent organizational briefing, Director Cook discussed funding priorities going forward and how researchers can take advantage of PCORI resources.
Standardization of maternal health data in electronic health records (EHR) will help researchers examine factors that impact health outcomes from pre-pregnancy to postpartum care and beyond. A new article in Healthcare IT News outlines a collaborative approach that led to the development of an implementation guide to support mapping maternal health data across clinical areas and use cases.
Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.
