Data Sources | AcademyHealth

Blog Post

Open Data’s Critical Role in Advancing Public Health & Research

The first installment of our blog series on open data highlights its critical role in driving public health and scientific research and explores the threats it faces despite longstanding bipartisan support to make federally-funded data freely available to the public.

Posted Apr 22, 2025 By Brianna Bragg

Topics Advocacy Data Sources Public & Population Health

Blog Post

Attacks on Data Accessibility Turn to Maternal Health: How States Can Help

One of the key datasets for maternal and child health, The Pregnancy Risk Assessment Monitoring System (PRAMS), has been taken offline and there is uncertainty if it will be made accessible again. The continuation of PRAMS, either at the federal or state level, is necessary to monitor and improve maternal and child health outcomes.

Posted Apr 17, 2025 By Madison Haiman, M.S.W., Emma Mairson, M.P.H.

Topics Advocacy Data Sources Public & Population Health

Blog Post

The new normal: Just-in-time evidence for health system decision-making

Old approaches to informing decision-makers with health system evidence have often moved too slowly and presented a single form of evidence

Posted Apr 2, 2024 By John Lavis, M.D., MS.c., Ph.D., Jeremy Grimshaw, M.B.Ch.B., Ph.D.

Topics Using Health Data Data Sources Analytic Tools Hospitals & Health Systems

Blog Post

Examining EHR Availability and Patient Access: Our NCHS/AcademyHealth Data Visualization Challenge Experience

2022 NCHS/AcademyHealth Data Visualization Challenge winners used publicly available data to explore patterns in electronic health record availability and access, and how social determinants of health may impact access.

Posted Feb 21, 2024 By Marisa Conte, M.L.I.S., Jennylee Swallow, M.S., John O'Malley, M.H.I., MS

Topics Using Health Data Data Sources Public & Population Health

Blog Post

NCHS/AcademyHealth Data Visualization Challenge Brings Different Schools Together

The winners of the 2022 NCHS/AcademyHealth Data Visualization Challenge discuss the benefits of interdisciplinary collaboration using national data sources to illustrate the intersectionality of food insecurity, disability status, and racial disparities

Posted Feb 8, 2024 By Anna Lewis, M.S.W., Aileen Chou, P.T., D.P.T., Youngmin Kwon

Topics Data Sources Health Equity Access to Care

Blog Post

Leveraging PCORI Resources for More Robust Health Services Research: Takeaways from AcademyHealth’s Organizational Briefing with PCORI Executive Director Nakela Cook

PCORI has awarded over $3 billion since 2010. In a recent organizational briefing, Director Cook discussed funding priorities going forward and how researchers can take advantage of PCORI resources.

Posted Aug 23, 2023 By Radhika Purandare

Topics HSR Resources & Methods Advocacy Quality Improvement Data Sources

Blog Post

Efforts to Improve EHR Data for Maternal Health Research Featured in Healthcare IT News

Standardization of maternal health data in electronic health records (EHR) will help researchers examine factors that impact health outcomes from pre-pregnancy to postpartum care and beyond. A new article in Healthcare IT News outlines a collaborative approach that led to the development of an implementation guide to support mapping maternal health data across clinical areas and use cases.

Posted Jun 15, 2022 By Lauren Adams, M.A.

Topics Data Sources Using Health Data Hospitals & Health Systems

Past Event

2022 Health Datapalooza and National Health Policy Conference

A gathering for health data and policy innovation.

Date & Time April 4-5, 2022 Location Crystal Gateway Marriott | Arlington, VA

Topics Advocacy Using Health Data Public & Population Health Data Sharing Data Sources

Publication

Navigating the Ethics of a New Research Landscape: Emerging Data, Methods, and Practices

Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.

Posted Nov 12, 2021

Topics Research Ethics & Governance HSR Resources & Methods Using Health Data Data Sources Data Sharing

Blog Post

Enhancing Patient-Centered Outcomes Research Data Infrastructure to Address the Opioid Crisis

The severity and the complexity of the opioid crisis require research that is both patient-centered and supported by robust data infrastructure. Several U.S. Department of Health and Human Services (HHS) projects are working across agencies to build the nation’s capacity for exactly this kind of research.

Posted Feb 17, 2021 By Prashila Dullabh, M.D.

Topics Using Health Data Data Sharing Data Sources Public & Population Health Health Datapalooza