Patient & Consumer Engagement

AcademyHealth is committed to supporting and fostering collaboration between consumers, patients, researchers and delivery systems leaders to improve the relevance and application of health services research. This section contains information on related programs as well as guidance and resources for researchers, patients and consumers.

Blog Post

Focus on Patients is a Key to Reducing Low-Value Care

AcademyHealth staff reflect on the continuing need to advance research on low value care, following a Health Affairs blog post urging a focus on vulnerable populations in broader efforts to reduce low-value care.

Posted Dec 16, 2019 By Lisa Simpson, M.B., B.Ch., M.P.H., FAAP

Topics Patient & Consumer Engagement Delivering Better Care Costs & Payments

Blog Post

The Power of Person-Generated Health Data: Five Ways to Improve the Care Experience

AcademyHealth and a group of diverse stakeholders are working to develop a unifying framework for using person-generated health data in shared decision-making.

Posted Oct 31, 2019 By Margo Edmunds, Ph.D., FAMIA

Topics Patient & Consumer Engagement Using Health Data Delivering Better Care

Blog Post

The First World Patient Safety Day: Time for a Moonshot for Health Services Research?

AcademyHealth member and Professor Hardeep Singh and Tejal Gandhi, chief clinical and safety officer at IHI, highlight three considerations for the field of health services research to advance patient safety.

Posted Sep 16, 2019 By Hardeep Singh, M.D., M.P.H. , Tejal Gandhi, M.D., M.P.H.

Topics Patient & Consumer Engagement Translation, Dissemination & Implementation Quality Improvement

Publication

Patient Centered Care Must Be Dynamic and Responsive

A physician, patient, caregiver and advocate offers her viewpoint on the barriers to patient centered care, including lack of understanding of the care giver role, insurance status, as well as bias, racism and social determinants of health.

Posted Sep 12, 2019

Topics Patient & Consumer Engagement Health Equity Hospitals & Health Systems

Publication

Patient Involvement Improves Research

A patient offers his viewpoint on what’s standing in the way of patient centered care in the U.S., emphasizing the need for patients and researchers to work together.

Posted Sep 12, 2019

Topics Patient & Consumer Engagement Hospitals & Health Systems

Publication

Literature Review Reveals Four Key Barriers to Patient Centered Care

Produced under the Optimizing Value in Health Care program, administered by AcademyHealth, this paper outlines the following barriers to patient centered care: missing information, inadequate trust, organizational culture, and alignment of incentives.

Posted Aug 27, 2019

Topics Patient & Consumer Engagement Hospitals & Health Systems

Blog Post

Supporting Patient-Centered Research

AcademyHealth recently submitted comments supporting PCORI reauthorization, in this post, guest author, Dr. Terri Finkel highlights the value of PCORI-supported network PEDSnet.

Posted Jun 18, 2019 By Terri H. Finkel, M.D., Ph.D.

Topics Patient & Consumer Engagement

Publication

The Role of Medicaid Engagement and Education Efforts in Improving Delivery of PrEP Intervention Services

This issue brief, commissioned by AcademyHealth, identifies ways the Medicaid program can educate patients and providers to improve the use of PrEP medication and clinical services.

Posted Jun 07, 2019

Topics Patient & Consumer Engagement Insurance, Medicare & Medicaid Delivering Better Care Public & Population Health

Blog Post

Culture of Health Innovator’s Work on Black Mothers’ Health Featured in Health Affairs

Joia Crear-Perry’s work on improving black mothers’ health was voted best Snapshot of Innovation at the March 2019 Sharing Knowledge to Build a Culture of Health conference held by the Robert Wood Johnson Foundation in collaboration with AcademyHealth.

Posted Jun 7, 2019 By Lauren Adams, M.A.

Topics Patient & Consumer Engagement Health Equity Delivering Better Care

Blog Post

Nothing About Us Without Us: How Can Researchers Respond to Teens’ Concerns about Mental Health?

In the second of a two-part blog series marking National Children’s Mental Health Awareness Week, a group of researchers respond to youth advocates’ thoughts on the mental health needs of adolescents.

Posted May 9, 2019 By Denise Dougherty, Ph.D., Elizabeth Cope, Ph.D., M.P.H., Richard L. Wittenberg, Lisa Simpson, M.B., B.Ch., M.P.H., FAAP

Topics Patient & Consumer Engagement Delivering Better Care Access to Care