Andrea Downing is a Community Data Organizer and an ePatient hacker.  Along with Fred Trotter, Downing discovered a security vulnerability which affected the privacy and safety of all closed groups on Facebook and launched a congressional inquiry. For the past year, she and her team have been working to get vulnerable patient groups to safety through The Light Collective. Andrea will share how her own struggles as an ePatient have led her down an unexpected path that is shaping the future for BRCA data-sharing. Andrea is fighting for digital health rights and safe spaces for patient support communities on social media.

Authored by Andrea Downing