Presenter

Andrea Downing

Co-Founder - The Light Collective

Andrea Downing is a BRCA Community Data Organizer and an ePatient security researcher. In 2018, Andrea discovered a security vulnerability which affected the privacy and safety of all closed groups on Facebook and launched a congressional inquiry.

Her work has been featured on CNN, Fortune, and The Verge, and has catalyzed an urgent dialogue on national health privacy policy and the need for protections outside of HIPAA. Andrea has co-founded a nonprofit called The Light Collective to work with vulnerable patient groups seeking digital rights and safe spaces for patient support communities on social media.

Authored by Andrea Downing

Blog Post

Recognizing and Uplifting the Legitimacy of Patient Experts for Better Health Data Tools and Policies

In this final post in a series, ePatient and Security Researcher Andrea Downing highlights where we need to build professional skills and lower barriers for patient experts to be part of a team in health care.

Posted Feb 09, 2020 By Andrea Downing

Topics Patient & Consumer Engagement Using Health Data Health Datapalooza National Health Policy Conference