Andrea Downing is a BRCA Community Data Organizer and an ePatient security researcher.  In 2018, Andrea discovered a security vulnerability which affected the privacy and safety of all closed groups on Facebook and launched a congressional inquiry.

Her work has been featured on CNNFortune, and The Verge, and has catalyzed an urgent dialogue on national health privacy policy and the need for protections outside of HIPAA. Andrea has co-founded a nonprofit called The Light Collective to work with vulnerable patient groups seeking digital rights and safe spaces for patient support communities on social media.

Authored by Andrea Downing