Webinar: Transforming Care for Children with Complex Medical Needs- Insights from HRSA-funded Demonstration Sites

Overview

This webinar introduced Enhancing Systems of Care for Children with Medical Complexity (CMC) as a five-year Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau (MCHB)-funded initiative. This 90-minute session provided an overview of the initiative and its five Demonstration Sites working to improve models of care for CMC. It also assessed outcomes that are informed by and meaningful to CMC and their families, ensuring all CMC have the potential for optimal health and family well-being. The session was framed by a parent caregiver, together with a provider perspective, who will address how to better engage patients to advance equity.

Watch Recorded Webinar

Learning Objectives

Participants of this webinar:

Learned about the initial progress of the five HRSA-funded Demonstration Sites.
Understood the importance and potential impact of this initiative to drive improvements in equitable family experience and outcomes of CMC care.
Gained awareness of where to access related resources and future materials disseminated by the Coordinating Center and the Demonstration Sites.

Participating Speakers

Moderators:

Staff

Elizabeth Cope, Ph.D., M.P.H.

Chief Programs & Science Officer - AcademyHealth

Elizabeth L. Cope, PhD, MPH, is Chief Programs & Science Officer at AcademyHealth where she is responsible for overseeing the development, implementation, and evaluation of all extramural programs, while ensuring that those programs are methodologically sound and aligned with the organization's strategic and innovation goals: make research relevant, make research better, and make research matter. Read Bio

Member

Richard Antonelli, M.D., M.S.

Medical Director of Integrated Care - Boston Children's Hospital

Richard Antonelli, M.D., M.S., is Medical Director of Integrated Care at Boston Children’s Hospital. Dr. Antonelli is a general pediatrician who has spent more than three decades serving children and youth with special health care needs and their families, with extensive experience working at the national level and in many states evaluating care delivery and informing improvement efforts. Read Bio

HSRA Representatives:

Presenter

Jeffrey P. Brosco, M.D., Ph.D.,

Director - Division of Services for Children with Special Health Needs (DSCSHN), HRSA

Dr. Brosco is a pediatrician and historian who serves as the Director for the Division of Services for Children with Special Health Needs (DSCSHN) in the Maternal and Child Health Bureau (MCHB) within the Health Resources and Services Administration (HRSA). Read Bio

Anna Maria Padlan, M.P.H.

HRSA'S Maternal and Child Health Bureau

Anna Maria Padlan joined HRSA in 2004 and currently works in HRSA’s Maternal and Child Health Bureau in the Division of Services for Children with Special Health Needs.  Read Bio

Speakers:

Norman A. Ospina, B.A.

Parent

I am the parent of two amazing children, one of which has a special health care need. Read Bio

Amy Houtrow, M.D., Ph.D., M.P.H.

Pediatric rehabilitation medicine physician - University of Pittsburgh

Amy Houtrow is a pediatric rehabilitation medicine physician and disability equity health services researcher who has dedicated her career to improving the health, functioning, well-being and belonging of children with disabilities. Read Bio

Demonstration Site Representatives:

Rahel Berhane, M.D.

Founding physician - Dell Children's Comprehensive Care Clinic (CCC)

Dr Berhane is the founding physician of the Dell Children's Comprehensive Care Clinic (CCC) and serves as its medical director. Read Bio