The Community Research for Health Equity (CRHE) program seeks to elevate community voices and make the priorities of communities the primary goal of local health system transformation efforts. In 2022, ten grantees were awarded to address local health system issues of importance to communities of color, people with disabilities, LGBTQ+ individuals, and other historically marginalized populations.
Read this white paper to learn about the findings from Think Kids’ CRHE project, “When All Are Counted,” which assessed how the state of West Virginia compiles and reports health surveillance data to build a more inclusive surveillance system, with a focus on three specific populations: the Black, LGBTQ+, and disability populations. The team conducted surveys, interviews, and focus groups to study variables for minority populations, disaggregated race, disability categories, and how minority populations are aggregated. The team also examined how other states use small populations methodologies, and how data are reported and translated into policies and practices.