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Data Sharing

Health care data are generated and stored in a wide variety of formats. How can data users access and share data in order to learn from it? Health services researchers and data users are looking at data sharing to improve health and health care.

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Blog Post Transforming Care for Children with Complex Medical Needs: Emerging Insights from Five HRSA-funded Demonstration Sites

Transforming Care for Children with Complex Medical Needs: Emerging Insights from Five HRSA-funded Demonstration Sites

A recent webinar for the HRSA-funded Enhancing Systems of Care for Children with Medical Complexity initiative shared early insights from the project’s five demonstration sites in their second year implementing innovative care models for improved care coordination and health outcomes for children with medical complexity and their families.
Posted Jun 24, 2024 By Maria Mutka, Amanda Brodt, M.P.P., Elizabeth Cope, Ph.D., M.P.H.
Topics Delivering Better Care Health Equity Data Sharing Quality Improvement Access to Care
Blog Post

AcademyHealth’s Medicaid Data Learning Network (MDLN) Research Faculty Explore Promises and Challenges of Medicaid Research Using T-MSIS Analytic Files (TAF) in New Blog from The Commonwealth Fund

The lack of high quality, accessible national claims data has long been a roadblock to robust Medicaid research and subsequent evidence-based policymaking in the United States. While the release of TAF marked a significant improvement, research faculty with AcademyHealth’s Medicaid Data Learning Network (MDLN) outline important steps that state and federal policy makers can take to improve data quality, accessibility, and usability.
Posted Jul 25, 2023 By Zoe D’Angelo
Topics Using Health Data Paying for Care Data Sharing Insurance, Medicare & Medicaid
Blog Post

Building Data Capacity for Patient-Centered Outcomes Research: Priorities for the Next Decade

A recent report from the National Academies of Sciences, Engineering, and Medicine helps the Office of the Assistant Secretary for Planning and Evaluation (ASPE) with its work to enhance the data infrastructure for patient-centered outcomes research, prioritizing a holistic view of an individual’s health, data linkages and more.
Posted Dec 8, 2022 By Elizabeth McGlynn, Ph.D., George Hripcsak, M.D., M.S., George Isham, M.D., M.S., Krisztina Marton, Ph.D.
Topics Using Health Data Data Sharing
Blog Post Despite Progress, We Still Need Innovation in Health Data and Policy

Despite Progress, We Still Need Innovation in Health Data and Policy

This year’s Health Datapalooza, taking place in February 2023, builds on a nearly 15-year legacy of data policy and innovation. Greg Downing traces this forum’s unique history, highlighting its beginning as a catalyst for data liberation to the current focus on inspiring innovative data application to transform health and health care.
Posted Nov 30, 2022 By Gregory Downing, D.O., Ph.D.
Topics Using Health Data Data Sharing Health Datapalooza
Blog Post

Bringing Data to Life for the NCHS/AcademyHealth Data Visualization Challenge

2021 NCHS/AcademyHealth Data Visualization Challenge Winners highlight the benefits of pulling data from multiple national data sources to build a data visualization demonstrating the disproportionate impact of the U.S. gun crisis on young Black men in urban areas.
Posted Oct 3, 2022 By Lauren E. Russell, M.P.P., Sumin Jeong, Sirin Yaemsiri, Ph.D., M.S.P.H., Ernest Moy, M.D., M.P.H.
Topics Using Health Data Health Equity Data Sharing