Read on Washington: August 2021 Advocacy Update from Lisa Simpson
This month’s “Read on Washington”, available only to AcademyHealth members, includes updates on vaccination mandates, ARPA-H negotiations, the future of CMMI, and more.
Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials
The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs
Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary Patient-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.
Advisory Group on Diversity, Equity, and Inclusion in Health Services and Policy Research Releases Recommendations
External advisors have submitted their report and recommendations to AcademyHealth to inform the development of a sustainable, action-oriented strategy to address diversity, equity, and inclusion (DEI) in the field.
Health Affairs Blog Post Examines Digital Strategies to Drive Research Participation
The post highlights recent findings from a PCORI-funded project on how to increase the numbers and diversity of research participants by returning value, or benefits, to them and incorporating digital tools to sustainably maximize impact and scale of these efforts.
Implementation Science: Incorporating Participatory System Dynamics to Identify and Address Barriers to Change
In order for health interventions to be effective, stakeholders must understand the deeply rooted systemic problems responsible for bottlenecks and miscommunications. The final blog in our series on implementation science examines how the study of participatory system dynamics can give implementation teams more insight into the root causes of health system pain points.
Lisa Simpson: Why ARPA-H must include HSR to Truly Improve Equity
AcademyHealth was grateful to be invited by the National Institutes of Health (NIH) and the White House Office of Science and Technology Policy (OSTP) to provide input on how the proposed Advanced Research Projects Agency for Health (ARPA-H) can be designed to reduce health care disparities.
Building a Better Evidence Base to Address the Social Determinants of Health
A recent literature review revealed most studies of social need interventions were poorly designed, inadequately documented, and inconsistently presented. In this post, Robert Dubois of the National Pharmaceutical Council, an AcademyHealth Organizational Member, outlines the state of the research and provides recommendations to improve study design quality.
Implementation Science: Leveraging User-Centered Design to Improve Experiences with Health Interventions
User-centered design helps make health interventions more engaging and effective for both patient participants and health care staff. How can implementation teams leverage user-centered design to achieve better outcomes?
The Role of Employers (and Employees) in the Health Spending Conversation
As partners in the Going Below The Surface Forum, AcademyHealth and the National Pharmaceutical Council (NPC) consider the drivers of health spending in the U.S. through salons focused on challenging questions. Today’s post takes a closer look at strategies to reduce costs via employer-sponsored health benefits.