Few people with a cause walk the talk as boldly and graciously as Christine Von Raesfeld, Patient Advocate. Christine is a pillar of patient advocacy and allyship in the rare and chronic disease community. Through the lens of her lived experiences in healthcare, she has become a champion for patient voices, diversity and inclusion in clinical research, and equitable patient-sponsor partnerships.
Christine has brought her unique perspective and honed expertise to countless roles as a featured speaker for numerous conferences on topics ranging from clinical trial recruitment to data & digital rights, from a true patient perspective. She serves as an e-patient scholar with Stanford MedicineX and a Technical Expert Panelist with CMS and a participant ambassador for the NIH, all of us research program, among other roles. Wherever possible, Christine generates momentum toward progress along her patient advocacy jouney and has become a thought leader worldwide, stimulating dialog on a range of topics relevant to patients, clinicians, and industry.
As a patient advisor, Christine has assisted several initiatives including the Stanford ""Humanwide"" Precision Medicine Program and the NIH All of Us Research Program and serves as a board member/advisor to multiple organizations and startups. For her many contributions to her field, she has been named one of the top 100 Women of Influence by Silicon Valley Business Journal, 2020 Silicon Valley Community Hero, a member of the 2021 HIMSS.