Creative and entrepreneurial individuals and organizations in different sectors are using technology to improve the care experience and promote engagement in research. This project aims to accelerate the adoption and use of consumer-friendly communications practices, data collection platforms, and other consumer decision support tools that improve the care experience and increase engagement in research and personal health.
Using a collaborative consensus process, AcademyHealth convened two invitational workshops of consumers, patients, caregivers; health services researchers; web developers; data scientists; social media experts; and usability experts who will work together to develop publishable peer-reviewed papers.
To accomplish these goals, cross-sector teams are writing four publishable papers on the following topics representing key concerns for consumers, patients and caregivers:
- a review of the evidence base for shared decision-making;
- tools (e.g., web portals, wearables) that support shared decision-making;
- policy issues related to privacy, security, and access to personal health data to support shared decision-making; and
- culture change to actively promote the consumer/patient/voice in shared decision-making.