Overview


The Robert Wood Johnson Foundation (RWJF) is soliciting a second batch of proposals for its signature research program: Health Data for Action: Leveraging Health Data for Actionable Insights (HD4A), supported by AcademyHealth. HD4A aims to reduce the barriers researchers often face in accessing data by serving as a conduit between data owners and interested researchers. Through the HD4A Call for Proposals, RWJF will make valuable data from unique data owners available to researchers. During this webinar staff at the Foundation, AcademyHealth, and the data experts answered questions about the application and review process and the new datasets being made available.

HD4A released its second Call for Proposals (CFP) on Oct. 30 with a submission deadline of Dec. 14. Applicants under this CFP will select one of four datasets from the Health Care Cost Institute, OptumLabs, CareJourney or athenahealth.

  • Health Care Cost Institute (HCCI): The Health Care Cost Institute’s data, contributed by three large national insurers—Aetna, Humana, and UnitedHealthcare—consist of fully adjudicated, paid, de-identified medical and pharmacy claims and include patients’ and providers’ geography, provider specialty, service dates, diagnostic and procedure codes, prescription drug codes, and allowed amounts plus any co-payments, deductibles, or co-insurance paid by the insured person.
  • OptumLabs: OptumLabs’ data asset includes de-identified claims data for privately insured and Medicare Advantage enrollees in a large, private, U.S. health plan. The OptumLabs Data Warehouse (OLDW) contains longitudinal health information on enrollees, representing a diverse mixture of ages, ethnicities and geographical regions across the United States. Data are available for the years 1993-2017 representing more than 120 million lives. The OLDW includes claims for physician, hospital, and prescription drug services.
  • CareJourney Network Advantage Data: Through an approved IRB, CareJourney data scientists access and run analytics on the Center for Medicare and Medicaid Services (CMS) Chronic Conditions Data Warehouse (CCW), inside of CMS’s own SAS environment. This data comprises roughly 50 million lives worth of longitudinal data. CareJourney also has access to the Medicare Shared Savings Program (MSSP) Accountable Care Organization (ACO) assignment and physician roster information for the entire country.
  • Athenahealthathenahealth has claims data and, in many cases, clinical data on more than 62 million patients seeing athenahealth providers today. This data includes not only information on those with insurance, but on the uninsured, as well. athenahealth is a cloud-based network, so it can access data in near real time and provide timely data on today’s most relevant health questions. athenahealth plans to share with researchers a de-identified dataset that includes BMI readings (with BMI z-scores for pediatric patients) from 2012–2017 for each visit to an athenahealth provider.

Watch Recorded Webinar


Speakers


Staff

Megan Collado, M.P.H.

Director - AcademyHealth

Megan Collado is a director at AcademyHealth, where she manages a number of Robert Wood Johnson Foundation gra... Read Bio

Katherine Hempstead
Presenter

Katherine Hempstead, Ph.D.

Senior Adviser - Robert Wood Johnson Foundation

Since late 2013, Katherine Hempstead, Ph.D., has directed the Robert Wood Johnson Foundation’s work on coverage. Read Bio

Amanda Frost
Presenter

Amanda Frost, M.A., Ph.D.

Senior Researcher - Health Care Cost Institute

Amanda Frost, MA, PhD, is a Senior Researcher at the Health Care Cost Institute (HCCI). Read Bio

Joe_Henk_Photo
Presenter

Henry (Joe) Henk, M.Sc., Ph.D.

Vice President of Research/Principal Scientist - OptumLabs

Henry (Joe) Henk, serves as OptumLabs Vice President of Research/Principal Scientist and co-leads the OptumLab... Read Bio

Chris_Lester_Photo
Presenter

Chris Lester, Ph.D.

Director of Data Science and Research - CareJourney

Dr. Chris Lester is the Director of Data Science and Research at CareJourney. He manages a team that builds pr... Read Bio

Presenter

Bethany Sheridan, Ph.D.

Managing Consultant, External Research Partnerships - athenahealth, Inc.

Bethany Sheridan leads athenahealth, Inc.’s public health research efforts, which are supported through an ong... Read Bio