Health care data are generated and stored in a wide variety of formats. How can data users access and share data in order to learn from it? Health services researchers and data users are looking at data sharing to improve health and health care.
This brief profiles the EDM Forum, an initiative to collect, synthesize, and share lessons learned from research projects that are developing and using electronic clinical data to conduct comparative effectiveness research and patient-centered outcomes research.
Since 2016, AcademyHealth has worked with the California Health Care Foundation to assist digital health market entrants understand their responsibilities under and effectively navigate the Privacy and Security Rules of the Health Insurance Portability and Accountability Act (HIPAA) as well as other federal and California privacy and security laws.