This project is funded under the Robert Wood Johnson Foundation’s program, Community Research for Health Equity (CRHE), a community-led research program that seeks to elevate community voices and make the priorities of communities the primary goal of local health system transformation efforts. The goal of the study is to assess how West Virginia compiles and reports health surveillance data in order to build a more inclusive surveillance system. The study seeks to examine how data are collected and shared, how marginalized groups are adversely affected, and structural solutions for a more representative system. The team will conduct surveys, interviews, and focus groups—studying variables for minority populations, disaggregated race and disability categories, and how minority populations are aggregated. The team will also examine how other states use small populations methodologies, and how data are reported and translated into policies and practices. Deliverables will include a project work plan and annual and final narrative and financial reports. The project team will also produce a public-facing product of their choice to share new knowledge that can address local health care system inequities and/or make recommendations for action toward system improvements.

Principal Investigator(s)

Kelli Caseman headshot

Kelli Caseman

Executive Director - Think Kids

Kelli Caseman is the Executive Director of Think Kids, a child health and well-being advocacy organization in ... Read Bio

Traci headshot

Traci Jarret

Research Assistant Professor - West Virginia University

Dr. Jarrett is a Research Assistant Professor in the WVU School of Public Health Department of Social and Beha... Read Bio



Everyone Counts. Everyone Should be Counted.

For the When All Are Counted project, a newly awarded grant under the Robert Wood Johnson Foundation's Community Research for Health Equity program, managed by AcademyHealth researchers are going to take a long, deep dive into how data is collected and shared in West Virginia to inform structural solutions to build a better, inclusive surveillance system in the state.