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AcademyHealth Blog

Welcome to the AcademyHealth blog, together with our members, we promote interaction across the health research and policy arenas by bringing together a broad spectrum of players to share their perspectives. Here we offer important perspectives from people passionate about expanding access to care, reducing costs and improving quality, as well as updates on AcademyHealth activities relevant to the community.

Blog Post Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials

Innovative Study Design Alleviates Challenges Associated with Rare Disease Clinical Trials

The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
Posted Aug 23, 2021 By Helen Moniz
Topics HSR Resources & Methods Patient & Consumer Engagement Using Health Data
Blog Post Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs

Data Infrastructure Efforts to Support Maternal Health Featured in Health Affairs

Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary Patient-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.
Posted Aug 12, 2021 By Susan Kennedy, M.P.P., M.S.W., Rachel Dungan, M.S.S.P.
Topics Patient & Consumer Engagement Health Equity Using Health Data
Blog Post Implementation Science: Incorporating Participatory System Dynamics to Identify and Address Barriers to Change

Implementation Science: Incorporating Participatory System Dynamics to Identify and Address Barriers to Change

In order for health interventions to be effective, stakeholders must understand the deeply rooted systemic problems responsible for bottlenecks and miscommunications. The final blog in our series on implementation science examines how the study of participatory system dynamics can give implementation teams more insight into the root causes of health system pain points.
Posted Aug 9, 2021 By Jennifer Bresnick
Topics Translation, Dissemination & Implementation Hospitals & Health Systems