Using Health Data

Since 2016, AcademyHealth has worked with the California Health Care Foundation to assist digital health market entrants understand their responsibilities under and effectively navigate the Privacy and Security Rules of the Health Insurance Portability and Accountability Act (HIPAA) as well as other federal and California privacy and security laws.

With support from the Center for Disease Control and Prevention (CDC) Foundation, AcademyHealth’s Evidence-Informed State Health Policy Institute in collaboration with the University of North Carolina-Chapel Hill is assessing syphilis testing among pregnant Medicaid beneficiaries as well as rates of STI testing of state Medicaid beneficiaries on PrEP.

AcademyHealth manages the Robert Wood Johnson Foundation’s Health Data for Action (HD4A) program. HD4A equips researchers with valuable data —information that can help them better answer important research questions.

With funding from the Gordon and Betty Moore Foundation, AcademyHealth, in collaboration with Innovations Horizons, is supporting pilot projects and work groups to help understand the potential of and challenges to using internet data to facilitate timely, accurate diagnosis and treatment.

Managed by AcademyHealth, this learning network facilitates peer-to-peer learning and dialogue among researchers working with the Centers for Medicare and Medicaid’s T-MSIS Analytic Files.

With funding from a Eugene Washington PCORI Engagement Award, AcademyHealth and a group of diverse stakeholders are identifying evidence gaps related to person-generated data; setting priorities for future studies; and providing insights into personal technology preferences that can inform the development of future consumer-facing tools.