Connect, Collaborate, Communicate: The Story of the EDM Forum
This is the story of how AcademyHealth supported a community that helped shape the next generation of learning health systems.
Health Data Innovator Privacy and Security Workshop
Seeing Last Year’s Comments in Action in 2017
Last year – as part of our ongoing charge to ensure health services research is accounted for in federal policy – AcademyHealth submitted several comments to federal policymakers -- among them were responses to the Notice of Proposed Rulemaking (NPRM) on the Federal Policy for the Protection of Human Subjects and the NPRM on the Confidentiality of Substance Use Disorder Patient Records from the Substance Abuse and Mental Health Services Administration. This year we’ve seen final rules on both these subjects released.
The New York City Macroscope: A New Model for Monitoring the Health of Communities
Research published in AcademyHealth’s eGEMs journal reveals a new model for monitoring the health of communities that is more efficient than traditional methods while still providing reliable information about a population’s health.
Preparing Nursing Home Data from Multiple Sites for Clinical Research
Nursing home research is often obstructed by the limited amount of research-quality patient data present in electronic form. In this case study, authors converted nursing home patients’ health data regarding falls and fall-related injuries into electronic forms to create a database for nursing home research using their converted data.
Electronic Data Methods (EDM) Forum Phase I Publications and Products
Data Model Considerations for Clinical Effectiveness Researchers
EDM Forum
Research Data Collection Methods: From Paper to Tablet Computers
EDM Forum
Commentary: Electronic Health Records for Comparative Effectiveness Research
This commentary was authored by participants of the Electronic Data Methods (EDM) Forum.
A Pragmatic Framework for Single-site and Multisite Data Quality Assessment in Electronic Health Record-based Clinical Research
This report is an EDM Forum-authored paper.