Data Sources

Last year – as part of our ongoing charge to ensure health services research is accounted for in federal policy – AcademyHealth submitted several comments to federal policymakers -- among them were responses to the Notice of Proposed Rulemaking (NPRM) on the Federal Policy for the Protection of Human Subjects and the NPRM on the Confidentiality of Substance Use Disorder Patient Records from the Substance Abuse and Mental Health Services Administration. This year we’ve seen final rules on both these subjects released.

Research published in AcademyHealth’s eGEMs journal reveals a new model for monitoring the health of communities that is more efficient than traditional methods while still providing reliable information about a population’s health.

Nursing home research is often obstructed by the limited amount of research-quality patient data present in electronic form. In this case study, authors converted nursing home patients’ health data regarding falls and fall-related injuries into electronic forms to create a database for nursing home research using their converted data.

EDM Forum

EDM Forum

This commentary was authored by participants of the Electronic Data Methods (EDM) Forum.

This report is an EDM Forum-authored paper.

From June 2015 to July 2017, the Community Health Peer Learning (CHP) Program built community capacity to advance progress toward population health improvements through the expanded capture, sharing, and use of electronic health data from diverse sectors.

Since 2016, AcademyHealth has worked with the California Health Care Foundation to assist digital health market entrants understand their responsibilities under and effectively navigate the Privacy and Security Rules of the Health Insurance Portability and Accountability Act (HIPAA) as well as other federal and California privacy and security laws.