Largest Real-World Database for Pro Bono COVID-19 Research Goes Live
A coalition of organizations is offering free access to the largest real-world data sets in the U.S. to support rapid COVID-19 research.
Recent Analysis of National Library of Medicine Database Reveals Overlooked Aspects of Diabetes Care, Including Disparities in Diabetes Management
Gavin Arneson, nursing student and winner of the National Library of Medicine’s HSRProj Research Competition for Students, and his mentor Maya Clark-Cutaia, reflect on the past, present and future of diabetes care and how national trends have touched both their lives.
Reinvigorating Public Health Systems Research in the Wake of the COVID-19 Pandemic
Leaders of the AcademyHealth Public Health Systems Research (PHSR) Interest Group highlight opportunities for PHSR to respond to COVID-19 in the following areas: public health workforce, health equity, financing, structure, and informatics.
Work Accepted to the 2020 Annual Research Meeting Represents the Best of Health Services Research
While the in-person 2020 Annual Research Meeting has been canceled, the abstracts accepted for presentation continue to demonstrate the quality and relevance of this field. AcademyHealth is pleased to publish this full list of all the names of those accepted to present at the meeting previously scheduled for mid-June in Boston.
Key Health Data and IT Considerations in Response to COVID-19
The pandemic is disrupting every aspect of our health care system. AcademyHealth member Patricia MacTaggart reflects on the need for a data and health IT infrastructure to address the who, what and how for these current unprecedented times and for the new reality that will follow.
Webinar: Mobilizing Computable Biomedical Knowledge for Learning Health Systems
This webinar introduced participants to a burgeoning movement to Mobilize Computable Biomedical Knowledge (MCBK).
New Initiative Aims to Build a Model Open COVID-19 Patient Data Registry Network
The Robert Wood Johnson Foundation’s Health Data for Action program, managed by AcademyHealth, is supporting a collaboration between Health Care Cost Institute (HCCI), CareJourney, and a network of health systems to increase the availability of standardized, actionable information on COVID-19 impact and progression.
Inaugural Health Data Impact Award Honors Work on Patients’ Rights to Access Personal Health Data
Award winner Deven McGraw guided the U.S. Department of Health and Human Services’ efforts to engage technology developers and patients with transparent and effective regulatory frameworks for the use of health data.
2020 Health Datapalooza
Co-located with the National Health Policy Conference
Recognizing and Uplifting the Legitimacy of Patient Experts for Better Health Data Tools and Policies
In this final post in a series, ePatient and Security Researcher Andrea Downing highlights where we need to build professional skills and lower barriers for patient experts to be part of a team in health care.