Webinar: Mobilizing Computable Biomedical Knowledge for Learning Health Systems
This webinar introduced participants to a burgeoning movement to Mobilize Computable Biomedical Knowledge (MCBK).
New Initiative Aims to Build a Model Open COVID-19 Patient Data Registry Network
The Robert Wood Johnson Foundation’s Health Data for Action program, managed by AcademyHealth, is supporting a collaboration between Health Care Cost Institute (HCCI), CareJourney, and a network of health systems to increase the availability of standardized, actionable information on COVID-19 impact and progression.
Inaugural Health Data Impact Award Honors Work on Patients’ Rights to Access Personal Health Data
Award winner Deven McGraw guided the U.S. Department of Health and Human Services’ efforts to engage technology developers and patients with transparent and effective regulatory frameworks for the use of health data.
2020 Health Datapalooza
Co-located with the National Health Policy Conference
Recognizing and Uplifting the Legitimacy of Patient Experts for Better Health Data Tools and Policies
In this final post in a series, ePatient and Security Researcher Andrea Downing highlights where we need to build professional skills and lower barriers for patient experts to be part of a team in health care.
Bridging Clinical and Research to Action and Impact
In this fourth post in a series leading up to Health Datapalooza and the National Health Policy Conference, Rasu Shrestha highlights ways clinicians and researchers can move their findings faster into policy, health systems and tech development.
Why We Need Less Data and More Story in the Evidence We Present
In the second of a two-part series, guest author Andy Krackov discusses visualizing your findings in ways that are accessible to a broader audience.
Learning from Past Progress to Advance the Future of Digital Health
Ashish Atreja reflects on advances in digital health and identifies trends to watch for the future in this third of a series of blog post prior to Health Datapalooza and the National Health Policy Conference.
Don’t Blame Your Audience if They’re Not Leveraging Your Data
In the first of a two-part series, guest author and data strategist Andy Krackov outlines practical tips on making sure your data is noticed by the right people.
Webinar: Closing the Data Gap
This webinar explored how Dataworks closes a key data gap by providing access to near real-time EMR data to help researchers better understand the health care burden of patients.