The explosion of health-related data has created new opportunities to understand how health care is delivered, paid for and preserved. Health services evidence helps us understand how to identify, validate, share and analyze data to improve health.
Health data and research ethicist, Dr. Camille Nebeker, reviews existing and emerging ethical considerations for health research using new data and methods, and uses an original framework to analyze several case examples – that demonstrate the relationships between domains of research and key ethical principles.
The Preparedness and Treatment Equity Coalition (PTEC) is supporting four teams develop implementable, data-driven research to decrease inequity in the health care system. These projects were identified in partnership with AcademyHealth and a work group comprised of PTEC members and partners.
While disadvantage indices are increasingly recognized as a valuable tool to help promote health and prioritize equity, future use of these tools must include investments in data infrastructure, community partnerships, and further evaluation.
For more than two decades the federal government deterred research into this leading cause of preventable death. A new report estimates the cost of closing the knowledge gap.
The road to the approval of therapies for rare diseases is long and challenging. This blog post outlines how one study addresses this through embracing a multistakeholder approach, removing travel barriers associated with participation, and leveraging historical patient data to replace placebo data.
Designed to build data capacity for conducting patient-centered outcomes research, ASPE’s Office of the Secretary Patient-Centered Outcomes Research Trust Fund has funded several cross-agency projects aimed at improving maternal health. A new Health Affairs blog post describes these efforts and highlights guiding principles for moving forward.
Leveraging data from AcademyHealth’s Medicaid Outcomes Distributed Research Network (MODRN), new research finds substantial improvements in use of medications for OUD. Improved understanding of the factors driving this increase is crucial to closing remaining treatment gaps.
Health system issues were featured at last month’s Annual Research Meeting (ARM) with a focus on equity, the impact of new data sources on decision making, and the need to advance the workforce.
The theme of scientific innovation featured prominently as this year’s Annual Research Meeting. Speakers across panels pointed to opportunities for the field of health services research to better address the needs of decisionmakers.
As AcademyHealth’s Paradigm Project continues to use human-centered design and other tools to identify ways to increase the relevance, timeliness, quality, and impact of HSR, integrating conversations about real-world data, community engagement, and participation will be critical.
